The Eye Believe Podcast

In this inspiring episode of the Eye Believe Podcast, we welcome author and advocate Rachel Sindaco, whose journey through Multiple Sclerosis (MS) and Ocular Melanoma (OM) reshaped her life in unimaginable ways—and ultimately saved it.

Rachel maintains a remarkable positive outlook, openly sharing how she considers herself lucky to have MS. It was her MS diagnosis that led to increased medical monitoring, allowing her ocular melanoma to be caught early—a discovery that may have saved her life. Without MS, Rachel believes her cancer might have gone undetected until it was too late.

Her book...

👁️ Eye on COOG – Special Eye Believe Mini-Seminar (Recording)

📅 Recorded on December 6, 2025

🔗 Learn more or register for future events: https://www.acureinsight.org/education-events

If you missed the live session — or want to watch it again — you're in the right place!

This recorded webinar breaks down the latest updates from COOG 2 uveal melanoma studies and explains what they mean for GEP results, PRAME status, and mutation testing.

Our expert speakers guide patients and caregivers through understanding eye tumor biopsy reports in a clear, supportive way.

🌟 Featured Speakers Kat Alsina – Castle Bios...

Welcome to Session 1 of the Eye Believe Survivorship Seminar 2025!

This 8:00 AM session features renowned ocular oncologist Dr. MATERIN (Duke Health) as he presents “Yesterday, Today & Tomorrow in Ocular Melanoma.”

In this powerful opening session, Dr. Materin walks attendees through:

🔹 The history and evolution of ocular melanoma care

🔹 Current diagnostic tools, treatments, and patient management approaches

🔹 What’s ahead in research, technology, and survivorship support

🔹 How patients, caregivers, and advocates can navigate their journey with greater confidence

This presentation is part of A Cure In Sight’s Eye Beli...

Eye On Research | Session 2: Adjuvant Therapies – What’s New Today? (And What Can You Do About It!?)

Join us for Session 2 of Eye On Research, presented by A Cure In Sight 💙. In this insightful session, top experts in the field—Dr. Carvajal, Dr. Lutzky, and Dr. Kahn—discuss the latest developments in adjuvant therapies for ocular melanoma.

🕦 Time: 11:30 AM EST
👩‍⚕️ Speakers:

Dr. Carvajal

Dr. Lutzky

Dr. Kahn

✨ Topics Covered:

What’s new and emerging in adjuvant therapies 🔬

The science behind current treatment strategies 🧬

Practica...

In this episode, we interview Danny Powell, an ocular melanoma (OM) patient whose tumor was identified early thanks to his eye doctor noticing a change and acting quickly. Danny explains his diagnosis, his treatment with brachytherapy, and how he later discovered that his grandmother also had OM—an extremely rare family connection. This prompted genetic testing, which revealed that Danny carries a BAP1 gene mutation. He discusses what that means for his ongoing care, his decision to join a clinical study, and the importance of regular surveillance scans. Whether you're an OM patient, caregiver, or medical professional, this episode pr...

🎧 Eye Believe Podcast | Giving Your Diagnosis Direction with Chris Brotherston & Mike Cornell

Getting an ocular melanoma diagnosis can feel overwhelming — but finding clarity, support, and direction can make all the difference.

💙 In this inspiring episode, we sit down with Chris Brotherston and Mike Cornell, two OM patients who share how they took charge of their journeys by turning uncertainty into purpose. From navigating initial shock to making informed decisions and finding community through A Cure In Sight, Chris and Mike’s stories remind us that no one has to face this diagnosis alone.

Tune in as...

🎙️ Men’s Health Panel Discussion — A Special Episode for Men’s Health Month In this powerful new episode from A Cure in Sight, we bring together an expert panel for an honest, insightful conversation in honor of Men’s Health Month. Our guests open up about the unique challenges men face in prioritizing their health—both mental and physical. Together, we explore: Men’s Health & OM: Why early detection, awareness, and open dialogue matter more than ever Advocacy in Action: How men can use their voices to push for research, support, and better outcomes The Patient Registry & Bio Bank: What these vital...

November is National Hospice and Palliative Care Month. Join A Cure in Sight, an ocular melanoma foundation, for an insightful conversation with Suzanne O’Brien, RN, on the important distinctions between palliative care and hospice care.

In this episode, Suzanne sheds light on the significant gaps in end-of-life education that leave many families overwhelmed and unsupported during some of the most challenging moments of their lives.

As the Founder & CEO of Doulagivers Institute, Suzanne B. O’Brien has dedicated her life to increasing access to high-quality end-of-life education and compassionate care. Drawing from her firsthand expe...

November is Men’s Health Month, and we’re diving into a topic that doesn’t get talked about enough — the emotional side of men’s health.

In this powerful episode, we sit down with Pervis Taylor, award-winning life coach, author, and mental health advocate, to explore how men can better navigate the challenges of emotional well-being, especially in the face of serious diagnoses like ocular melanoma.

Pervis shares his insights on breaking stigma, building resilience, and learning to express and process emotions in healthy, empowering ways. His compassionate and practical approach reminds us that strength b...

How To Leverage AI In Your Diagnosis Journey with Chris Donaldson | The Eye Believe Podcast

Meet Chris Donaldson, an ocular melanoma (OM) patient and AI professional who’s redefining what it means to take control of your health journey.

When faced with conflicting medical opinions at the onset of his diagnosis, Chris turned to a tool far more powerful than Google—artificial intelligence—to help guide his decisions and find clarity in the chaos.

In this inspiring episode, Chris shares how AI played a pivotal role in his diagnosis and ongoing care, helping him ac...

In this inspiring episode of the Eye Believe Podcast 🎙️, brought to you by A Cure In Sight 💙, we hear from Allie Dashow, a young and passionate ocular melanoma patient who has turned her diagnosis into a mission to raise awareness and make a difference.

Now three years into her journey, Allie reflects on where she is today—how she’s grown, found strength, and become an advocate and voice for others facing OM 🌈.

From her personal experiences to her work within the larger melanoma community, Allie’s story is one of courage, purpose, and using her voice to crea...

In this heartfelt episode of the Eye Believe Podcast 🎙️, brought to you by A Cure In Sight 💙, we meet Shana Bar, an international patient from 🇨🇦 Canada, who shares her journey living with metastatic uveal melanoma.

Shana opens up about her experience on a clinical trial 🔬—the hope it’s brought, the encouraging news she’s received, and how her outlook on life has evolved along the way 🌈. But she also speaks candidly about the emotional side of survivorship—the gratitude and the guilt that can come with doing well while others in the community face harder outcomes 💔.

✨ This conversation is a...

In this inspiring episode of the Eye Believe Podcast 🎙️, brought to you by A Cure In Sight 💙, we sit down with Yvonne, a remarkable patient who was diagnosed with ocular melanoma in late 2019. What makes Yvonne’s story even more extraordinary is that she has brown eyes—a rare diagnosis among an already rare cancer 👁️. She opens up about the shock of her diagnosis, the emotional and physical challenges she’s faced, and the strength it takes to navigate life after OM 🌈. Through hope, faith, and community, Yvonne reminds us that every story—no matter how rare—has the power to inspire 💫. 🎧 List...

In this compelling episode of the Eye Believe Podcast 🎙️, brought to you by A Cure In Sight 💙, patient Nick Konovaloff shares his powerful journey living with metastatic uveal melanoma. From diagnosis 🩺 to joining a clinical trial 🔬, Nick opens up about the challenges, hope, and determination that have shaped his experience. ✨ This honest and inspiring conversation reminds us that even in the face of uncertainty, there is always hope—and a community standing beside you 🤝. Connect with Nick here- https://www.photographybynicholai.com 🎧 Listen now to Nick’s story of courage, perseverance, and faith in the power of science and support. #EyeBelievePodcas...

In this powerful episode of the Eye Believe Podcast 🎙️, brought to you by A Cure In Sight 💙, patient Tessa Parry-Wingfield shares her courageous journey with ocular melanoma. From the life-changing moment of diagnosis 🩺 to undergoing enucleation 👁️, Tessa opens up about the challenges and triumphs she has faced along the way.

Through writing ✍️, Tessa has found both healing and purpose—transforming her experience into a source of strength while helping others in the ocular melanoma community feel seen, supported, and understood 🌈.

✨ Her story is one of resilience, creativity, and hope, reminding us all of the power of sharing our journeys. Duration: 00:38:08

Eye On Research | Session 1: Metastatic Treatments Join us for Session 1 of Eye On Research, presented by A Cure In Sight 💙. In this session, leading experts share the latest on systemic clinical trials, treatment updates, and innovations in liver-directed therapies for metastatic ocular melanoma. 👩‍⚕️ Speakers: Dr. Carvajal Dr. Moser Dr. Montazeri Dr. Orloff Dr. Burns ✨ Topics Covered: Advances in systemic clinical trials 🔬 What’s new in liver-directed therapies 🩺 Treatment updates and research breakthroughs 🌟 This powerful discussion provides patients, caregivers, and advocates with the most up-to-date information on treatment options and ongoing research for metastatic ocular melanoma. 👉 Don’t miss this opportunity to learn from top...

In this inspiring episode of the Eye Believe Podcast 🎙️, brought to you by A Cure In Sight 💙, we sit down with patient Ross Wither and his wife Megann Wither to hear their remarkable story of resilience, faith, and hope ✨.

Ross shares his journey from the life-changing moment of diagnosis 🩺 through the uncertainty of treatment decisions, to finding a clinical trial 🔬 that gave him new possibilities. With Megann by his side ❤️, they walk us through their experiences with plaque brachytherapy 🌟, the emotional challenges they faced, and the small and large miracles they witnessed along the way 🙏.

This heartfelt conversatio...

🎙️ Eye Believe Podcast – Featuring Dr. Zachary T. Berman

💙 If you enjoy this free information and want to support our mission, please consider donating here: https://acureinsight.org/donate/ 🙏 Every gift makes a difference!

In this episode of the Eye Believe Podcast, we welcome Zachary T. Berman, MD, Associate Professor of Clinical Radiology at the University of California, San Diego. Dr. Berman is a national thought leader in interventional oncology with a subspecialty focus on hepatobiliary malignancies. A graduate of Case Western Reserve University School of Medicine, he completed his internal medicine internship and...

🎙 Rare Cancer Day Spotlight: Maya Skubatch’s Story | The Eye Believe Podcast

In this special Rare Cancer Day episode of the Eye Believe Podcast, we sit down with Maya Skubatch, a cancer patient living with Blue Nevus Melanoma — an ultra rare cancer nearly identical to uveal melanoma. 🌟

Maya’s journey is one of resilience, courage, and hope. As one of the rarest of the rare, she shares her powerful personal story, the challenges of navigating a rare cancer diagnosis, and the importance of raising awareness for conditions that often go unheard.

Join us in honoring...

🎙 The Latest in Ocular Melanoma with Dr. Inderjit Mehmi | The Eye Believe Podcast

In this episode of the Eye Believe Podcast, we welcome Dr. Mehmi, a highly respected medical oncologist at The Angeles Clinic and Research Institute with a deep interest in melanoma — including cutaneous, uveal, and mucosal types.

Dr. Mehmi shares the most up-to-date research, treatments, and breakthroughs in ocular melanoma (OM), offering valuable insights.

From evolving therapies to promising clinical trials, this conversation is a must-listen for anyone wanting to stay informed on advancements in the fight against OM.

📢 Don’t fo...

Eye On The Expert: Taking Charge of Eye Health with Dr. Dorothy Hitchmoth

Dr. Hitchmoth shares expert insights on the powerful role that diet and healthy lifestyle habits play in protecting your vision and promoting lifelong eye health.

From practical nutrition tips to daily habits that safeguard your sight, you’ll learn actionable strategies you can start using today to take charge of your eye health and reduce your risk of vision loss.

In this webinar, you’ll discover:

How diet influences your eye health and overall well-being

The best...

We’re honored to welcome Dr. Carol Shields, one of the world’s leading ocular oncologists and Director of the Oncology Service at Wills Eye Hospital, to the Eye Believe Podcast by A Cure In Sight. 👁

Dr. Shields shares how telehealth is transforming care for ocular melanoma patients — improving access, making follow-ups easier, and ensuring patients get expert care without the hassle. 🙌

She also offers a very touching tribute to her late husband, Dr. Jerry Shields, whose legacy and partnership shaped the field of ocular oncology. ❤️

💙 If you or someone you love is affected by ocular...

Meet Ashley Morgan — a true rarity in the ocular melanoma community. Before her diagnosis, Ashley was already navigating life completely blind. In this powerful and inspiring conversation, Ashley shares her extraordinary journey, resilience, and the realities of facing a cancer diagnosis without sight.

Her story is one of courage, hope, and the unwavering belief that even in darkness, you can still shine. 🌟

🎧 Listen now and be moved by Ashley’s strength and perspective.

#EyeBelievePodcast #OcularMelanoma #RareDiseaseAwareness #BlindAndBrave #CancerSurvivor #InspiringStories #VisionWithoutSight #OMWarrior #EyeCancerAwareness #RareButThere #BlindnessAwareness #HopeInTheDark

🎙️ The Eye Believe Podcast – New Episode Featuring Danet Peterson: How to Cope with Scanxiety Ocular melanoma is hard enough — but the stress around regular scans can be overwhelming. In this powerful and heartfelt conversation, Danet Peterson opens up about her own journey with “scanxiety” — the emotional rollercoaster that comes before, during, and after medical scans. Danet shares her personal coping strategies, mindset shifts, and practical tips to help manage the anxiety that so many in the ocular melanoma community know all too well. From self-care rituals to reframing fear into empowerment, this episode is filled with insight, hope, and encouragement f...

🎧 New Episode: A Physician Assistant Becomes the Patient — Mark Moore’s Ocular Melanoma Journey

In this moving episode of the Eye Believe Podcast, host Megan Bekkedahl sits down with Mark Moore, an ocular melanoma patient and practicing physician assistant, who shares his story of diagnosis, treatment, and healing — all through the dual lens of a medical professional and a survivor.

Mark opens up about:

The moment he discovered something was wrong

Navigating the emotional and clinical sides of being a patient

How his medical background shaped his...

🍦 Why I Eat Pink Ice Cream – Sharlene Carlson's Story | The Eye Believe Podcast 🎙️

In celebration of National Ice Cream Day (July 20th), we’re thrilled to welcome back Sharlene Carlson to The Eye Believe Podcast!

Sharlene shares the powerful story behind her love for pink ice cream — a sweet symbol of resilience, survivorship, and hope after her ocular melanoma journey. 💖

Whether you're a survivor, a caregiver, or someone who believes in finding joy in the little things — this episode will inspire you to celebrate your resilience in your own unique way.<...

🎙️ New Episode Alert: Eye Believe Podcast with Dr. Pauline Funchain! 👁️🧬

In this powerful new episode of The Eye Believe Podcast, host Danet Peterson sits down with the brilliant Dr. Pauline Funchain, a leading researcher in ocular oncology, to explore the latest news in clinical trials for ocular melanoma.

Tune in to catch the “411” of clinical trials for metastatic uveal melanoma. In this episode, Dr. Funchain helps explain some of the key phrases to understand when researching a clinical trial, and we end with the most current list of actively recruiting clinical trials as of 5/5/25...

Step onto the mat with us for a powerful new episode of the Eye Believe Podcast as we welcome Marco Moreno, a Gracie Jiu-Jitsu black belt and owner of Mastery Jiu-Jitsu Academy in Leesburg, Virginia.

In honor of Men’s Health Month, Marco joins us to talk about the vital role of physical activity, stress management, and community connection in improving men’s health.

From discipline on the mat to confidence off it, this episode is packed with wisdom for anyone looking to strengthen their body, mindset, and life. Whether you’re a mar...

🎧 New Episode Alert! Eye Believe Podcast – Featuring Mike De Vivo | Men’s Health Month Special

June is Men’s Health Month, and we’re diving into the importance of men’s wellness with expert trainer and advocate Mike De Vivo! In this episode, Mike opens up about the unique challenges men face when it comes to prioritizing health.

We cover essential topics like:

How balance and routine support long-term wellness

Fitness strategies that work for everyone, including those with low vision

Tools and tips for building a heal...

In honor of Men’s Health Month, we’re diving deep into a conversation that’s often overlooked: men’s mental health.

This week on the Eye Believe Podcast, we're joined by Alexander Vasquez, an advocate and voice for men's emotional wellness. He opens up about his personal journey, breaking the silence around mental struggles, and why it’s time we redefine strength—not as stoicism, but as vulnerability and connection.

💬 Let’s talk about it. Let’s change the narrative.

🔗 Don’t forget to like, subscribe, and share to help us reach...

🎧 New Episode: “The Gift of Time” with Linds Brown | The Eye Believe Podcast

In this inspiring episode of the Eye Believe podcast, we’re joined by special guest Linds Brown, who shares a powerful message about time—how we view it, how it affects us, and how we can shift our mindset to see time as a gift rather than a limitation. Linds explores the idea that time is not against us—but on our side.

Through her thoughtful perspective, she offers practical and heartfelt advice on how to reframe the way we look at time...

🎙️ Women, OM & What They Don’t Tell You | The Eye Believe Podcast

May is Ocular Melanoma Awareness Month and Women's Health Month, and we're diving deep into the challenges that come with both. In this powerful episode, Vikki, Kristen, and Danet open up about what it’s like to navigate ocular melanoma as young women—from fertility concerns and family planning to, yes… periods. 👀💬

Join us for an honest, real, and empowering conversation about the intersections of eye cancer and women’s health that often go unspoken.

👉 Don't forget to like, comme...

🎙 Hepzato Hope – Alley’s Story | The Eye Believe Podcast 🎙

In this inspiring and informative episode, we welcome Alley—a resilient military wife, proud mom of two amazing boys, and fellow ocular melanoma survivor. Alley bravely shares her journey navigating a metastatic uveal melanoma diagnosis and her experience with the newest FDA-approved liver-directed treatment: Hepzato Kit.

She opens up about the realities of treatment—the challenges, the unexpected moments, and the victories along the way. If you or a loved one are facing ocular melanoma or are curious about what to expect from the Hepzato...

🎙️ New Podcast Episode: Navigating Clinical Trials with Nathalie Riebel of Oncospire

In this enlightening episode of The Eye Believe Podcast, we sit down with Nathalie Riebel — CEO and founder of Oncospire 🌟 and principal consultant with over 30 years of industry experience. Nathalie has held leadership roles at major pharmaceutical companies 🔬.

She joins us to explain:

Why clinical trials matter 🧬

What participating in one might look like 👩‍⚕️👨‍⚕️

And most importantly, what questions you should ask before enrolling ❓📝

Whether you're a patient, caregiver, or advocate, this episode will leave you informed, empowered, and ready to take t...

🎧 New Episode of Eye Believe Podcast!

In this powerful episode, we’re joined by two leading experts in ocular oncology—Dr. Mruthyunjaya and Dr. Funchain—for a deep dive into adjuvant and neoadjuvant therapies in the treatment of ocular melanoma.

They share their insights on: Key differences between adjuvant and neoadjuvant therapies

Current clinical trials and promising advancements How personalized medicine is shaping the future of treatment Whether you're a patient, caregiver, or healthcare professional, this episode offers valuable education and hope in the fight against eye cancer.

In this episode, our hosts, Megan and Danet, sit down with special guest Ashley McCrary, founder of the Eye on Grace Foundation.

💛 May is Melanoma Awareness Month, and we’re bringing attention to the critical need for early detection, research, and support for those affected by ocular melanoma, and how you can help make a difference. 🕶️

Plus, Eye Patch Day is just around the corner! Find out how you can get involved, raise awareness, and show solidarity with the eye cancer community in a fun, meaningful way.

📌 Don’t forget to subscribe, like, and share to he...

🎙️ New Episode: The Road Through Grief: Embracing Love and Loss with Barbara Hill 💔❤️

In this heartfelt episode of The Eye Believe Podcast, we sit down with Barbara Hill—author of The Road Through Grief: Embracing Love and Loss—for an intimate conversation about navigating life after loss. 🌅

Barbara opens up about her personal journey through grief and the healing process that inspired her powerful book 📖. Together, we explore the complexity of mourning 😢, the beauty of resilience 🌻, and how love remains even in the wake of deep sorrow 💞. Whether you're walking through your own season of loss or supporting someone who...

Welcome back to The Eye Believe Podcast! 🎙️ In this empowering episode, our returning guest Anna Clough joins us again to dive into the importance of consistency over perfection on your health journey. 💪🥦 Whether you're just starting out or looking for motivation to stay the course, Anna shares practical tips, mindset shifts, and real talk to help you stay aligned with your goals—without the pressure of being perfect. 🙌 🎯 It's not about doing it all—it's about doing it consistently. 💬 In this episode: ✅ How to build habits that actually stick ✅ Letting go of the all-or-nothing mindset ✅ Staying motivated on tough days ✅ Embracing progress over...

🎙️ Breaking New Ground in Ocular Melanoma Treatment | The Eye Believe Podcast ft. Sush Patel

In this powerful episode of the Eye Believe Podcast, host Danet sits down with 💡 Sush Patel from Replimune to dive into the latest breakthroughs in treating ocular melanoma. 👁️🎗️ This convo is packed with hope, innovation, and insight for patients, caregivers, and advocates alike! 🙌

🔥 What’s Inside:

✨ Game-changing therapies

🧪 Behind the scenes at Replimune

💬 Expert insights from Sush Patel

🌍 What it all means for the ocular melanoma community

Hit that 👍, drop a comment 💬, and...

🎉 BIG NEWS! 🎉 The recording of our latest A Cure in Sight webinar "Puzzling-Out Liver-Directed Therapies" 🧩 is now LIVE on YouTube & your favorite podcast platforms!

If you missed it (or just want to rewatch the brilliance), now’s your chance to catch this powerhouse panel:

🩺 Dr. Moser

🧠 Dr. Padia

🔬 Dr. Ma

💡 Dr. Burns

They dove deep into the latest in liver-directed treatments for #ocularmelanoma, including Hepzato Kit and Histotripsy,💙 and shared insights that every patient and caregiver should hear.

🌟 Let’s keep learning, sharing, and figh...

🌟 The Big Rocks of Health with Anna Clough | Start Your Wellness Journey Today! 💪🍎💧

Welcome to a brand-new episode from A Cure In Sight! This time, we’re sitting down with Anna Clough, owner of Strong and Healthy, to talk about the BIG ROCKS of health — the essential building blocks for feeling your best every day. Anna makes it simple, approachable, and empowering to take control of your wellness. Whether you're just starting out or need a gentle reset, her advice is all about getting back to the fundamentals — and doing it in a way that works for you.

🧴 How to Find Clean Beauty Products Without the Stress with Jacquelyn Rodriguez | Eye Believe Podcast Welcome back to The Eye Believe Podcast by A Cure in Sight!

In this episode, we’re joined by the amazing Jacquelyn Rodriguez—owner of Enlightened Styles Salon and The Clean Beauty Biz Coach. Jacquelyn breaks down how to find safer, cleaner cosmetics in a way that’s easy, approachable, and totally doable. 💄✨

She shares practical tips to help you shop smarter, stay healthy, and feel confident in your beauty routine—without the pressure. Whether you're new to clean beauty or just looking...

🎙️ New Episode of The Eye Believe Podcast | Featuring Jessica Renfeldt

Welcome back to The Eye Believe Podcast, brought to you by A Cure in Sight! In this episode, we sit down with Jessica Renfeldt—a mindset coach, author, and speaker who has transformed her journey of overcoming significant health challenges into a mission of inspiring others. Jessica shares how she discovered the power of gratitude and how shifting her mindset helped her find joy and fulfillment, even in the face of adversity.

Tune in to hear her incredible story and learn practical ways to bring more po...

🧠 Brain Injury Awareness: What You Need to Know!

March is Brain Injury Awareness Month, and in this episode, we’re diving into the critical topic of brain injuries, medical care, and chemo brain with our special guests Donna A. Meltzer and Claire Callison-Aub from Brain Injury Services. 🎗️💙  

We’ll be discussing:  
✅ How to recognize the signs of a brain injury 🏥  
✅ When to seek medical attention and why it’s crucial 🚨  
✅ What is chemo brain (chemo-related cognitive impairment) 🧠  
✅ Resources and support for those affected 💛  

Join us for this important conversation and help us spread awareness! Don’t forget...

New Episode: Finding Magic in The Muck Turning Life’s Challenges into an Epic Adventure with Dr. Jason Frishman! 🎙️✨

In this episode, we sit down with Dr. Jason Frishman, a psychotherapist, thought leader, and founder of JourneyMen, to explore how we can reframe life’s everyday obstacles into an epic quest. With over 20 years of experience working with individuals, families, and organizations in settings as diverse as boardrooms, farmers' markets, and wild outdoor spaces, Jason shares his wisdom on:

🔹 Building a solid foundation for personal growth

🔹 Finding magic in the muck—embracing life’s messy moments

In this powerful episode of The Eye Believe Podcast 🎧, we are joined by Jacqueline, a melanoma survivor who has an inspiring story of resilience 💪 and a wealth of experience in legislative advocacy 🏛️. Jacqueline opens up about her personal journey battling melanoma, sharing both the challenges she faced and the strength that helped her overcome them. She also dives deep into the importance of advocacy, offering valuable insights on how you can make an impact by advocating for melanoma awareness at both the local and federal levels 🌍. Whether you're a patient, survivor, or someone who wants to help, this episode is packed with...

Emotional Processing Through Reading with Megan Fritz | The Eye Believe Podcast

Join host Danet and special guest Megan Fritz in this heartfelt episode as they explore the powerful connection between reading and emotional healing during a cancer journey.

In this inspiring conversation, Megan shares her personal insights on how books can serve as a therapeutic tool for navigating the emotional rollercoaster of cancer treatment, offering comfort, perspective, and hope.

Whether you're a cancer warrior, caregiver, or simply someone seeking emotional support, this episode is packed with valuable takeaways on self-care and mental wellness...

"Talking to Kids About Cancer 💬: Honest Conversations & Support"

Parenting through cancer is one of the toughest challenges a family can face. In this video, Danet Peterson sits down with oncology social worker Carissa Hodgson to explore how parents can talk to their children about cancer with honesty, compassion, and reassurance. 💙

What You’ll Learn:

Join me, Danet Peterson, and special guest Karen Long as we discuss her powerful journey through ocular melanoma and the importance of self-advocacy in navigating this challenging diagnosis. From understanding the diagnosis to exploring treatments like brachytherapy and proton beam therapy, and finding support networks, this video empowers patients to take charge of their health. 💙 🧐 What you'll discover: The importance of asking the right questions Exploring treatment options like immunotherapy Leveraging support networks for guidance Tips for navigating complex healthcare systems 🎉 Get your FREE webinar pass: https://s.mtrbio.com/LookingforACure Come visit us: http://acureinsight.org/ #OcularMelanoma #SelfAdvocacy #CancerSup...

🌟 Discover Cutting-Edge Insights on Ocular Melanoma and Uveal Melanoma 🌟 Join us for an engaging discussion with Dr. Tara McCannel, a leading expert in ocular oncology at UCLA’s Stein Eye Institute. In this video, we explore: ✨ The latest advancements in ocular melanoma (uveal melanoma) treatments. 🔬 Radiation therapy options: Brachytherapy vs. Proton Therapy. 👁️‍🗨️ Living with a prosthetic eye after surgery. 🩺 How early detection and research are improving patient outcomes. 🎯 Don’t miss this opportunity to gain valuable knowledge and resources for navigating ocular melanoma! 🎥 Free Webinar: Looking for a Cure 💻 Get exclusive insights and support through our free webinar! 👉 Register here: https://s.mtrbio.com/LookingforACure...

🌟 Revolutionizing Cancer Monitoring! 🌟

Discover how liquid biopsies are transforming cancer care, especially in uveal melanoma. 🧬 In this insightful session, leading experts discuss groundbreaking advancements in circulating tumor cells (CTCs) and circulating tumor DNA (ctDNA) detection. 💉✨ Learn how these minimally invasive techniques are paving the way for personalized cancer care, reducing the need for traditional scans, and offering patients a more precise and less stressful approach to treatment monitoring.

🚀 Explore Cutting-Edge Research:
🩸 What are circulating tumor cells (CTCs) and DNA (ctDNA)?
🧠 How liquid biopsies minimize invasive scans.
📈 The potential to predict and track treatment responses.
👩...

🧬 ClinicalDrugTrials A Doctor's Perspective for Uveal Melanoma Patients 💡 Are you curious about clinical drug trials and how they can help in the fight against uveal melanoma? This video is your go-to guide! 🎥✨ Join us as we dive into the ins and outs of clinical trials from a doctor’s perspective. Whether you're a patient, caregiver, or just want to understand how doctors approach these trials, this video will break down the complex process into easy-to-follow explanations. 🩺💊 What to Expect ✅ A clear breakdown of what clinical drug trials are 🧪 ✅ The different phases of clinical trials and what they mean 🔍 ✅ How doctors determine if a trial is...

🧬 Genetic Testing in Uveal Melanoma: Advancements & Challenges 🚀 In this video, Dr. Moser and Dr. Ulrich dive into the fascinating world of genetic testing 🔍 for uveal melanoma, a rare and complex cancer. 🎗️ They break down cutting-edge topics like somatic testing, liquid biopsies, and whole exome sequencing, offering valuable insights for patients and caregivers alike. ✨ What you’ll learn: ✅ The difference between tissue biopsies and liquid biopsies 🩸 ✅ How genetic mutations like GNAQ and GNA11 impact treatment 🧠 ✅ Why whole exome sequencing offers a comprehensive view 🧬 ✅ Tips on navigating genetic reports and advocating for better care 💪 ✅ The role of genetic data in shaping personalized cancer treatment 🔑 This ses...

🌟 Histotripsy and Hepzato: Revolutionizing Liver Cancer Treatment 🌟 Join us for an engaging seminar on the latest advancements in liver-directed therapies, including Histotripsy and Hepzato Therapy. 🧬✨ Learn how these innovative treatments are transforming care for patients with liver tumors, including those with uveal melanoma metastases. 💙 🔍 What You'll Learn: ✅ The science behind Histotripsy and its non-invasive approach 🩺 ✅ How Hepzato delivers targeted chemotherapy directly to the liver 💊 ✅ Key differences between percutaneous and transarterial techniques 🛠️ ✅ Clinical trial updates and patient outcomes 📊 💡 Don’t miss this opportunity to explore the future of liver cancer treatment! 👉 Sign up for our next webinar here: https://s.mtrbio.com/LookingforACure 📅 🔔 Subscribe for up...

"💧 How Non-Toxic Cleaning Supports Your Healing Journey 🌟" Discover the transformative power of non-toxic cleaning! 🌿 In this episode, we dive into how creating a healthier, chemical-free home environment can support your healing journey and overall well-being. Join Megan and special guest Christy Quillen, owner of Eastern Shore Green Clean, as they share expert tips, product recommendations, and the science behind why non-toxic cleaning is essential for reducing stress and promoting recovery. 🏡✨ 💡 What You’ll Learn: The dangers of traditional cleaning products 🚫 How non-toxic alternatives can improve air quality and support healing 🌸 Easy steps to make your home a safe, stress-free sanctuary 🌍 🔔 Don’t forge...

"💪 Coping with Ocular Melanoma: A Family's Journey Through Fear, Faith & Resilience ❤️" In this heartfelt video, we dive into the emotional journey of families navigating the challenges of ocular melanoma. 👁️ From diagnosis to treatment, discover how cancer doesn’t just affect the patient, but everyone around them. 💬 Join us as we discuss: 🔹 How families cope with the emotional toll of cancer 🔹 The importance of honest communication and support within the family 🗣️ 🔹 The powerful role of faith and resilience during difficult times 🌟 🔹 Real stories of love, strength, and overcoming fear together 🤝 Whether you or a loved one is facing cancer, this video offers hope, support, and real-lif...

💙✨ Shielding Hope: How Parents Cope with Ocular Melanoma 💪👁️ In this heartfelt episode, we explore the emotional journey parents face when protecting their children against ocular melanoma. Featuring insights, experiences, and stories from real parents who have been through it, we shed light on how families can cope, find hope, and keep moving forward. 🌱💪 👂 Tune in to hear: Real experiences from parents battling ocular melanoma. Expert insights on coping mechanisms and support resources. Ways to foster hope and resilience amid the challenge. 💬 Join the conversation and share your experiences. Together, we can help spread hope! ✨💙 🔔 Don't forget to like, comment, and subscribe for more content on...

"✨ Breaking Down Toxic Positivity: Embracing the Messy Side of Healing 💔"🌟 What does true resilience look like when facing cancer? 💪 In this candid and powerful video, we dive deep into the raw journey of living with ocular melanoma 👁️, and the messy, authentic side of healing. Forget the picture-perfect stories of bouncing back effortlessly—this is about real, human experiences. 💔 Join us as we explore: 🔹 The ups and downs of battling cancer 🎢 🔹 Why toxic positivity isn't the answer ❌ 🔹 The importance of allowing yourself to grieve 😢 🔹 How to embrace your own version of healing and resilience 💖 💡 This is a story for anyone who’s struggled with grief, resilience, or self...

🌟 Discover the Keys to Mental Health Healing! 🌟 Are you curious about how different therapy modalities can help you overcome anxiety, depression, or even trauma? 🤔 Join us in this insightful video where we break down some of the most effective mental health therapies available today, including Cognitive Behavioral Therapy (CBT), Acceptance and Commitment Therapy (ACT), Dialectical Behavioral Therapy (DBT), and more! 🧠✨ 💬 What You'll Learn: 🔹 How CBT can help you change thought patterns to improve your mood and behavior 🔹 The role of ACT in accepting difficult emotions and building a meaningful life 🌱 🔹 How DBT offers concrete tools to manage emotional distress and strengthen relationships...

Discover the surprising ways mental wellness is evolving in 2024, from virtual therapy to new treatment options for conditions like ocular melanoma. Learn how the landscape of mental health is changing for the better! 🌟 Join us at the Eye on Mental Health Seminar! 🌟 This hybrid event brought together experts and advocates to explore the latest breakthroughs in mental wellness. From innovative therapies to practical tools for emotional resilience, you’ll discover actionable insights that can make a difference in your mental health journey. 🧠💡Find the surprising ways mental wellness is evolving in 2024, from virtual therapy to new treatment options for conditions lik...

"📚 Books, Cancer, and Courage: Coping with Ocular Melanoma 💪" 📚 Coping with Ocular Melanoma Through Books and Resilience 💪 In this heartfelt video, we share our personal journey of navigating life with ocular melanoma 👁️ and how books have been a powerful tool in helping us cope. From fantasy worlds to personal development reads, we explore how reading has provided comfort, strength, and a healthy escape during some of the toughest moments of our cancer journey. ✨ What You'll Learn: 🔹 How reading can be a powerful form of healthy escapism 🔹 The impact of characters and stories in helping us process trauma and resilience 🔹 Our favorite books that have ins...

🌿 Unlock Ayurvedic Secrets for Better Digestion 🌿

In this episode, we dive into the ancient wisdom of Ayurveda to explore how you can naturally improve your digestion and overall well-being. Learn about the key principles of Ayurvedic medicine, how to balance your digestive system, and practical tips to enhance your gut health through mindful eating and natural remedies.

✨ What You’ll Discover:

Whether...

🔬 Episode Title: Breakthrough Liver Cancer Therapies: Dr. Padia Shares Insights on Liver-Directed Treatments

In this episode, we’re joined by Dr. Padia, a leading interventional radiologist from UCLA, who dives into the latest advancements in treating liver metastasis. Dr. Padia discusses the groundbreaking liver-directed therapies that are giving hope to patients battling metastatic cancer, with a special focus on the exciting new developments surrounding the Hepzato Kit.

Key Takeaways:

Can Hypnosis Help Fight Eye Cancer 🌟 Hypnotherapy Secrets for Ocular Melanoma Patients REVEALED 🌟 Are you or a loved one battling ocular melanoma? Discover the transformative power of hypnotherapy in our latest video, "Can Hypnosis Help Fight Eye Cancer?" Dive deep into mind-body techniques specifically designed to support eye health and enhance your journey toward healing. 🔍 In This Video, You'll Learn: Hypnotherapy and Eye Health: Understand the critical connection between your mind and eye health, and what you NEED to know to harness this powerful tool. Mind-Body Techniques for Coping with Ocular Melanoma: Explore effective strategies to manage stress, reduce anxiety...

In this video, Dr. Shields reveals the truth about pediatric and pregnancy ocular melanoma. Learn more about this rare form of cancer and how it can be treated. Dr. Shields reveals the truth about pediatric & pregnancy ocular melanoma in this informative video. Learn all about uveal melanoma from the expert!In this video, Dr. Shields reveals the truth about pediatric and pregnancy ocular melanoma. Learn more about this rare eye cancer.In this video, Dr. Shields reveals the truth about pediatric and pregnancy ocular melanoma. Learn more about this rare eye cancer.In this powerful episode of the Eye...

Get an exclusive look at the cutting-edge research on ocular melanoma, uveal melanoma, retinoblastoma, and more in this eye-opening video on eye cancer in 2024!Eye on Research 2024: Advancing Innovation in Cancer Research and TreatmentDescription:Welcome to the second annual "Eye on Research 2024" event! We are thrilled to be joined by a panel of esteemed doctors and researchers who are leading groundbreaking efforts in cancer research and treatment. Special thanks to all our guest doctors, including Dr. Correa and others, for their dedication to improving patient outcomes through innovation and cutting-edge science.Dr. Correa: Leading discussions on the latest advancements...

une in now to dive into Presley Jackson's incredible Polaroid project! Diagnosed at just 13, Presley has been unstoppable in sharing his journey these last few years, with the unwavering support of his amazing mom, Stephanie. His outlook in the face of #ocularmelanoma, his plaque treatment with Dr. Shields, and his transition into adulthood is nothing short of inspiring. Don’t miss this video, and get ready for an exciting YouTube and Podcast channel launch later this week! A massive thank you to everyone who supports, organizes fundraisers, and participates in the Lookin' For A Cure For Ocular Melanoma 5k ra...

Hope is on the Horizon with Dr. Shields! Please help us share this video to spread the hope in #ocularmelanoma Legend Dr. Shields discloses the importance of early detection, advances in research, and helps you understand YOUR brand of #uvealmelanoma Got questions? Share below and let us know so we can bring her back to bring you more of what you'd like to know! 👀 If you like our content and want to continue to have videos like these, please support our efforts by liking or subscribing, share this video and donate as we can continue to provide this free con...

"Explore the revolutionary FDA-approved liver-directed therapy for metastatic uveal melanoma in our latest discussion with Dr. Chmielowski from UCLA. Discover how this groundbreaking treatment is making strides in patient care and what it means for future oncological practices. Learn about the therapy’s development, its impact on patient outcomes, and UCLA's role in advancing treatment options. Tune in to uncover how this innovative approach is reshaping the treatment landscape for uveal melanoma."

"Revolutionizing Ocular Melanoma Treatment: New Insights from ASCO 2024"

"Join us at the ASCO 2024 meeting in Chicago where Castle Bioscience's groundbreaking study on Uveal melanoma is unveiled. Dive into an in-depth discussion about the latest advancements in gene expression profiling and genomic testing. Learn how these technologies are shaping the future of ocular melanoma treatment, improving patient outcomes, and guiding clinical decisions. Don't miss out on this exclusive coverage bringing hope and new solutions to melanoma patients!"

"Join us in this  episode of the Eye Believe Podcast, where we sit down with Ayurvedic health counselor, Vytautel, to explore the transformative power of Ayurveda. In today’s session, we delve into the critical role of sleep in natural healing and how Ayurvedic practices can optimize your health. Discover actionable tips, insights into herbal remedies, and the holistic approach of Ayurveda to maintaining balance in life. Make sure to like, subscribe, and click the bell icon to keep updated with our journey into wellness and natural health solutions!"

If you have more specific topics covered in the...

Welcome to the Eye Believe Podcast! In this episode, we're joined by the incredible Aimee Kandrac, founder of What Friends Do, to explore the essential role friends and loved ones play in supporting those with a cancer diagnosis.

Episode Highlights:

Navigating a Uveal Melanoma Diagnosis: Expert Insights 

Description:

Welcome to an enlightening episode of our webinar series, where we dive deep into the complexities of navigating a Uveal Melanoma diagnosis. In this episode, we are joined by renowned ocular oncologists, Dr. Jesse Berry and Dr. Marlana Orloff who bring their extensive knowledge and experience to the table.

What You'll Learn:

In this empowering episode of the Eye Believe Podcast, we are joined by Janice Russell, known as the Overwhelm Slayer. Janice specializes in helping individuals manage the chaos and stress that come with new or changing medical diagnoses. With her unique blend of expertise in special education, corporate organization, and hands-on productivity, Janice offers invaluable insights into navigating overwhelming situations.

Janice shares her journey and the inspiration behind becoming the Overwhelm Slayer. She delves into practical strategies for managing stress, organizing medical paperwork, and optimizing time, especially when dealing with complex medical conditions. Janice also discusses the im...

Welcome to another inspiring episode of the Eye Believe Podcast! Today, we are joined by Sandy, a dedicated practitioner at Life Spark, who shares her profound insights into the transformative power of Reiki and healing touch therapies, especially for cancer patients. Discover how these holistic practices are making a significant impact on patients' lives by alleviating stress and promoting relaxation.

In this episode, you will learn:

In this episode of the Eye Believe Podcast, we delve into the topic of eye enucleation, offering a detailed guide on how to prepare for this significant medical procedure. We cover:

Whether you are undergoing this surgery or supporting someone who is, this episode provides valuable insights and practical advice to help you through the process.

click picture to watch on YouTube!!!!!!!!!!!

"Welcome to another episode of the Eye Believe Podcast! In this episode, host Megan is joined by Dr. Jose Lutzky from the Sylvester Comprehensive Cancer Center to discuss the unique challenges and solutions for international uveal melanoma patients. Dr. Lutzky provides insights into his melanoma program, the significance of clinical trials, and the comprehensive care available to patients from Central and South America. This episode is a must-listen for anyone seeking to understand more about uveal melanoma and the support available for international patients.

Key Topics:

Join us in this powerful episode of the Eye Believe Podcast as we share the inspiring story of Tara Ruckman. Tara has faced multiple cancer diagnoses, including subcutaneous melanoma and, most recently, ocular melanoma. Despite these immense challenges, Tara's journey is a testament to strength, resilience, and hope.

In this episode, you'll learn:

In this compelling episode of the Eye Believe Podcast, we are honored to share the story of Amy Reeves Clews, a courageous mother who was diagnosed with ocular melanoma at 20 weeks pregnant. Amy's journey is a testament to resilience, hope, and the power of a mother's love.

After experiencing unusual symptoms like flashing floaters, Amy sought medical advice, only to discover she had a rare form of eye cancer. Despite the devastating news and the complexities of undergoing treatment while pregnant, Amy's determination to protect her unborn daughter never wavered. Her story unfolds t...

Find out more at nostorylost.com

Join us in this heartfelt episode of the "I Believe Podcast" where we dive deep with Andrew, the founder of No Story Lost. Discover how a simple family tradition of storytelling transformed into a mission to preserve precious memories for generations. Andrew shares the inspiring journey behind No Story Lost, from recording his grandfather's tales to creating a service that helps others capture and cherish their own family histories.

In This Episode:

Welcome to our latest episode where we dive deep into the world of immunotherapy, an innovative approach to cancer treatment that leverages the body’s own immune system to fight cancer. Join us as we explore how immunotherapy offers hope and new options for patients, especially those dealing with conditions like ocular melanoma.

In this episode, we're joined by Lucy Innes, an ocular melanoma patient and PhD researcher, who shares her personal journey and the complexities of immunotherapy. We'll cover everything from the basics of the immune system to advanced treatments that might just change the future of...

In this deeply moving video, Erin recounts her 20-year battle with ocular melanoma, offering insights and hope to those facing similar challenges.

Diagnosed at just 23, Erin's journey through treatments, recurrences, and personal growth illuminates the path of resilience and survival.

Highlights of Erin's Story:

- Early symptoms and the crucial steps leading to her diagnosis. - The impact of treatment, including the innovative approaches that helped her.

- How Erin maintained her mental health and found strength in her community.

- The role of support systems in n...

🔬Discover the groundbreaking journey towards a cancer cure with Aura Biosciences' pioneering nano virus-like drug conjugate therapy, for the primary treatment of ocular melanoma. In this episode of the Eye Believe Podcast, we dive deep with Eli de los Pinos, founder of Aura Biosciences, exploring the cutting-edge advancements in treating ocular melanoma and beyond.

🌟 Eli shares her passionate journey from a scientist to an entrepreneur, driven to develop transformative drugs that offer hope without compromise. Learn how their novel approach aims to prime the immune system's T-cells to become vigilant warriors against cancer cells, offering a potential cure t...

Join A Cure in Sight, an ocular melanoma foundation, to interview guest, Andrew from @nostorylost

“Andrew Hall is the Co-Founder of No Story Lost. He started No Story Lost with his cousin and best pal, Jeremy. No Story Lost was born after Andrew and Jeremy recorded their Grandfather's story; they saw how important the result was for their family, but also how much hard work it was to do without a service to help. When Andrew's not working, he enjoys traveling, playing sports, and spending time with friends and family.”

We'll have a...

Join A Cure in Sight, an ocular melanoma foundation, for our first quarter webinar, Good for the Eyes, Good for the Heart. Our guest, Dr. Dorothy Hitchmoth from the Ocular Wellness & Nutrition Society will discuss overall eye nutrition and health, and how caring for your whole body aids in caring for your eyes.

Or follow along here for slides. 

ANNOUNCEMENTS:

5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a r...

“The difference between an adventure and an ordeal is your attitude.” Bob Bitchin

Join A Cure in Sight, an ocular melanoma foundation, and special guest, Megan McClay. 

"𝗙𝗼𝗿𝗴𝗲𝘁 𝘀𝘁𝗿𝗶𝘃𝗶𝗻𝗴 𝗳𝗼𝗿 𝗮 𝗯𝗶𝗴𝗴𝗲𝗿 𝗵𝗼𝗺𝗲 𝗮𝗻𝗱 𝗮 𝗯𝗲𝘁𝘁𝗲𝗿 𝗰𝗮𝗿. 𝗦𝗹𝗼𝘄 𝗱𝗼𝘄𝗻, 𝗯𝗲 𝗴𝗿𝗮𝘁𝗲𝗳𝘂𝗹 𝗳𝗼𝗿 𝘄𝗵𝗮𝘁 𝘆𝗼𝘂 𝗵𝗮𝘃𝗲 𝗮𝗻𝗱 𝘁𝗮𝗸𝗲 𝘁𝗶𝗺𝗲 𝘄𝗶𝘁𝗵 𝘁𝗵𝗲 𝗽𝗲𝗼𝗽𝗹𝗲 𝘆𝗼𝘂 𝗹𝗼𝘃𝗲."

𝗧𝗵𝗶𝘀 𝗶𝘀 𝘁𝗵𝗲 𝗮𝗱𝘃𝗶𝗰𝗲 𝗳𝗿𝗼𝗺 𝗠𝗲𝗴𝗮𝗻 𝗠𝗰𝗖𝗹𝗮𝘆, 𝟯𝟬, 𝘄𝗵𝗼 𝗶𝘀 𝗹𝗶𝘃𝗶𝗻𝗴 𝘄𝗶𝘁𝗵 𝘁𝗲𝗿𝗺𝗶𝗻𝗮𝗹 𝗰𝗮𝗻𝗰𝗲𝗿.

𝗘𝗶𝗴𝗵𝘁𝗲𝗲𝗻 𝗺𝗼𝗻𝘁𝗵𝘀 𝗮𝗴𝗼 𝘀𝗵𝗲 𝘄𝗮𝘀 𝘁𝗼𝗹𝗱 𝗵𝗲𝗿 𝗼𝗰𝘂𝗹𝗮𝗿 𝗺𝗲𝗹𝗮𝗻𝗼𝗺𝗮 𝗵𝗮𝗱 𝗮𝗱𝘃𝗮𝗻𝗰𝗲𝗱 𝘁𝗼 𝘀𝘁𝗮𝗴𝗲 𝗳𝗼𝘂𝗿, 𝘀𝗽𝗿𝗲𝗮𝗱 𝘁𝗼 𝗵𝗲𝗿 𝗹𝗶𝘃𝗲𝗿 𝗮𝗻𝗱 𝘀𝗵𝗲 𝗵𝗮𝗱 𝗮𝗻 𝗲𝘀𝘁𝗶𝗺𝗮𝘁𝗲𝗱 𝘁𝘄𝗼 𝘆𝗲𝗮𝗿𝘀 𝘁𝗼 𝗹𝗶𝘃𝗲.

"𝗜'𝗺 𝗮𝗯𝗹𝗲 𝘁𝗼 𝗵𝗮𝘃𝗲 𝗮 𝗽𝗲𝗿𝘀𝗽𝗲𝗰𝘁𝗶𝘃𝗲 𝗼𝗻 𝘄𝗵𝗮𝘁 𝗶𝘀 𝗶𝗺𝗽𝗼𝗿𝘁𝗮𝗻𝘁 𝘁𝗼 𝗺𝗲 𝘁𝗵𝗮𝘁 𝗜 𝗱𝗶𝗱𝗻'𝘁 𝗵𝗮𝘃𝗲 𝗯𝗲𝗳𝗼𝗿𝗲," 𝘀𝗵𝗲 𝘀𝗮𝗶𝗱." - excerpt from the article '𝐖𝐡𝐚𝐭 𝐦𝐲 𝐭𝐞𝐫𝐦𝐢𝐧𝐚𝐥 𝐜𝐚𝐧𝐜𝐞𝐫 𝐝𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬 𝐭𝐚𝐮𝐠𝐡𝐭 𝐦𝐞 𝐚𝐛𝐨𝐮𝐭 𝐥𝐢𝐟𝐞' featured on @BBCnews

Full article can be read here. 

We'll chat briefly about her story with OM and her nuggets of wisdom of navigating the #raredisease of #ocularmelanoma to kick off this month of February where we as omies can be part of the #lightupforrare movement around the world. She shares openly and courageously about confronting her stage iv diagnosis and the sense of normalcy that she has settled into, despite the discomfort of facing her mortality on a day to day basis.

Connect with Megan on Facebook or Instagram or in social media groups.

ANNOUNCEMENTS:

5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!?

March 24, 2024, Tampa, FL

https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL

May 18, 2024, Raleigh, NC

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Ocular Melanoma is a family disease. It doesn't just affect one person - having this diagnosis, the fear of the unknown can affect everyone from immediate family, friends, and more. Learning how to support each other with varying needs and boundaries amidst your diagnosis is worth the listen to this unique patient panel, led by patient and therapist, Carol McColl.

Carol McColl has worked as a licensed professional counselor for 16 years, specializing in trauma recovery. She is also the author of The Single Mom’s Devotional (Revell, 2009.) Carol lives in Dallas, TX, with her husband Angus, their ad...

Ocular Melanoma patients face a LOT in their diagnosis journey. Facing the fear of recurrence, the fear around scans, fear of dying - there's a lot to unpack. Join us to hear from Katie Wilson, a therapist and patient herself, who specifically studies resilience and the development of post traumatic growth.

Katie Wilson is a therapist and an adult educator. She received her master’s degree in counseling Psychology from Gonzaga in 2003. She has worked as a mental health clinician for almost 20 years specializing in trauma. Katie was a psychology instructor and spent several years teaching for No...

Ocular Melanoma is enough to justify extra support. Dr. Allison Dashow, a patient and psychologist, shares a summary of therapies patients may find supportive, emphasizing the skills that can be developed to reach a point of radical acceptance in your diagnosis.

Dr. Allie Dashow is a clinical psychologist and has been seeing clients for psychotherapy and group therapy for the past 6 years. She specializes in the following therapy modalities: cognitive behavioral therapy, dialectical behavioral therapy, and acceptance and commitment therapy. Allie also specializes in eating disorders and body image difficulties. She has run multiple psychoeducational trainings for...

Ocular Melanoma is a beast of a diagnosis. Fellow cancer survivor and patient Eve Bogdanove shares strategies for coping with your diagnosis and making meaning throughout the journey. 

Eve N. Bogdanove has been a clinical social worker for 28 years. She is a psychodynamically trained with additional training in IFS, SE, EMDR, DBT and is a AASECT Certified Sex & Gender Therapist.  She has expertise in CPTSD and working with perpetrators who harm their intimate partners.   

Our mini seminar this year was brought to you by Castle Biosciences, as well as Aura Biosciences, Immunocore, IDEAYA Biosciences, Delcath Syst...

Join A Cure in Sight, an ocular melanoma foundation, to interview David Stanley, an author and melanoma survivor, on Thursday Feb 1, at 11AM EST LIVE on YouTube and our Facebook page. 𝐓𝐡𝐞 𝐟𝐨𝐜𝐮𝐬: 𝐋𝐈𝐕𝐈𝐍𝐆 𝐢𝐧 𝐭𝐡𝐞 𝐅𝐚𝐜𝐞 𝐨𝐟 𝐅𝐞𝐚𝐫 𝐰𝐡𝐢𝐥𝐞 𝐧𝐚𝐯𝐢𝐠𝐚𝐭𝐢𝐧𝐠 𝐚 𝐜𝐚𝐧𝐜𝐞𝐫 𝐝𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬.

"With 𝑴𝒆𝒍𝒂𝒏𝒐𝒎𝒂: 𝑰𝒕 𝑺𝒕𝒂𝒓𝒕𝒆𝒅 𝒘𝒊𝒕𝒉 𝒂 𝑭𝒓𝒆𝒄𝒌𝒍𝒆, David L. Stanley invites you to join him on an inside tour of his cancer. You’ll travel with Stanley from the dimly lit and elegantly decorated office of the dermatologist to the fluorescent glare of the operating room theater and back to the workplace as he faces up to melanoma, the only major cancer that has seen its incidence rise since 2000, with humor, humility, and a deep understanding of the disease borne of research and science.

In a memoir that speaks to anyone who has bumped up against a major health scare, Stanley offers up an engaging primer on how to finesse a path through cancer, the bo...

Join A Cure in Sight, an ocular melanoma foundation, to bring you an Eye Believe Mini-Seminar, Eye on COOG, where we're joined by Dr. Harbour, Dr. Reichstein, Dr. Williams, and Dr. Correa to discuss the Collaborative Ocular Oncology Group, it's founding and history, the research this collaborative study has yielded, and where COOG hopes to take the ocular melanoma community in the future. 

Join A Cure in Sight, an ocular melanoma foundation, and Dr. William Harbour, Dr. Zelia Correa, Dr. David Reichstein, and Dr. Basil Williams to tune into this half day mini-seminar about the updates to o...

Join A Cure in Sight, an ocular melanoma foundation, to interview Debora Barton at TScan Therapeutics.

Tune in for an episode full of hopeful advances in treatment avenues and research.

Check out their website, www.tscan.com for information on their sites open for prescreening as well as their treatment protocol.

You can learn more about the uveal melanoma specific trials at the links below: NCT05812027 (screening protocol) and NCT05973487 (treatment protocol).

Debora Barton, M.D., is the Chief Medical Officer at TScan Therapeutics. Debora, a clinical oncologist experienced...

Join A Cure in Sight, an ocular melanoma foundation, to interview patients, Ashley McCrary, Kristen MacDonald, and Loren Seaman. We’ll be chatting about their journey through advocacy and where they are today, their personal missions and passion for improving the lives of omies everywhere.

Many thanks to The Melanoma Research Alliance and the Ocular Melanoma Foundation for collaborating on this next year's Steps for Sight movement.

Steps for Sight 2024 is officially OPEN for registration! Head to

www.charityfootprints.com/SFS2024

For more details, to start your team, or to...

Join A Cure in Sight, an ocular melanoma foundation and special guest, Dr. Lauren Dalvin at Mayo in Minnesota to chat about AAO and the exciting news for uveal melanoma, and then tune in for a discussion validating the patient experience and journey with initial diagnosis of ocular melanoma.

She shares the news from 3 new primary treatments of the eye. There is so much excitement in the realm of what is new and novel. Uveal melanoma as a whole is looking so much more hopeful with the acceleration of research!

STUDY LINKS: 

...

Join A Cure in Sight, an ocular melanoma foundation, to interview Suzanne O'brien on the topic of Palliative v. Hospice care.

Suzanne B. O’Brien RN is the Founder & CEO of Doulagivers Institute. Her life's mission is to increase the availability and access to high quality end of life education and care for patients and families throughout the world. Suzanne has developed free resources and trainings for family caregivers and practitioners from her firsthand experience working at the bedside of over 1,000 end of life patients as a hospice nurse and palliative care professional.

Dou...

A Cure in Sight, an ocular melanoma foundation, is joined by guest, Jennifer Welborn, from Richmond, VA. She is daughter of Bobby Welborn, a patient who valiantly fought OM until July of 2023 when he passed.

She has dedicated her participation in the All American and Mrs. All American International Pageant to her father’s legacy, and conveys a level of advocacy we are proud to bear witness to, and have her support in.

With her crowning as Mrs. All American International, she has planned for her year’s appointment to serve an immense purpose: Sharing far...

Steps for Sight 2024 is officially OPEN for registration!

Head to www.charityfootprints.com/SFS2024 for more details, to start your team, or to contribute to the cause!

We are partnering with the Melanoma Research Alliance (MRA) to maximize the benefits from the funds raised. The money we raised last year will be matched by MRA to fund a 2-year research grant for Ocular Melanoma. Grant proposals have been received and are currently undergoing the MRA’s meticulous grant review process.

Once proposals have been approved, we will work with MRA to jointly issue th...

Barbara from Fred Hutch will talk about empowering yourself in survivorship.

Barb is currently working at Fred Hutch in the Dept of Oncology serving as the APP for the Survivorship program. As a Stage 3c melanoma patient in surveillance she hopes to support her patients not only as their provider but fellow survivor.

Email contact@acureinsight.org with questions.

ANNOUNCEMENTS:

5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! 

November 11, Los Angeles CA

https://runsignup.com/Race/CA/S...

In this session, hear from various experts about what it takes to get a drug to market. The bottom line is that research simply does NOT equal a cure. Learn from some of the best in the uveal melanoma pharma world about the process of bringing a treatment or new drug to market.

Experts include Dr. Katz, Chief Medical Officer at TriSalus Life Sciences; Dr. Wade from Aura Bioscienes, Lucinda Innes, a PHD research student investigating uveal melanoma, and research board member Kevin.

Dr. Steven Katz has been the Chief Medical Officer at TriSalus since...