IDD Health Matters

Kayla McKeon, the first registered lobbyist with Down syndrome, discusses her advocacy work, including lobbying for disability rights and health equity, and her involvement in the creation of a Barbie doll representing individuals with Down syndrome. She highlights the importance of inclusive representation and policy change, such as the Organ Transplant Discrimination Prevention Act and fair wage initiatives. Kayla also emphasizes the high risk of Alzheimer's among people with Down syndrome and the need for related health policy efforts. She concludes with empowering advice: share your personal story, advocate for issues affecting the disability community, and always be yourself.<...

Christine Clause, a dedicated mother and advocate, shares her profound journey of raising her son with developmental disabilities and her professional role at Neighbors Inc., a nonprofit in New Jersey supporting adults with intellectual and developmental disabilities (IDD). She recounts the challenges she has faced navigating the healthcare system, including a harrowing experience when her son was hospitalized with the flu and nearly died due to medical professionals’ assumptions about his quality of life. Christine emphasizes the importance of family members asserting their knowledge and role in medical decision-making, and she highlights how showing a video of her son th...

In this episode of the IDD Health Matters podcast, Terry Reiser discusses her deep involvement in the field of aging and developmental disabilities, highlighting her journey from attending a conference in 2017 to becoming a board member of the Association on Aging with Developmental Disabilities. She shares a personal story about her aunt with Down syndrome, who lived through the traumatic experience of Willowbrook, a notorious institution known for mistreatment of residents, and eventually found a better life in a group home. Reiser emphasizes the importance of recognizing the growing population of aging individuals with intellectual and developmental disabilities and...

Dr. Alicia Thatcher, a family physician from Saskatchewan, Canada, specializes in primary care for adults with intellectual and developmental disabilities (IDD). Her passion for this field began as a camp counselor and evolved through involvement in organizations like Special Olympics and Best Buddies. Recognizing the gap in adult services compared to pediatric care, she has pioneered curriculum development for medical education, aiming to make care for adults with IDD more sustainable and widespread. She also plays a leadership role in national initiatives, including the Developmental Disabilities Member Interest Group and the American Academy of Developmental Medicine and Dentistry, advocating...

Andrea Palmer, CEO and co-founder of Awake Labs, was featured on the IDD Health Matters podcast to discuss her company’s innovative assistive technology designed to support individuals with intellectual and developmental disabilities (IDD). Awake Labs uses smartwatches to monitor stress and emotional escalation in real time, providing alerts for self-regulation and enabling timely intervention by support teams. The system includes a smartwatch app, mobile app, and a web dashboard for care teams to analyze behavioral trends and improve support strategies. This technology has helped users gain independence, reduce anxiety-related hospitalizations, and improve relationships and community engagement. Palmer emphasized th...

Massalan Forfana Bility, honored as the Direct Support Professional of the Year at the ANCOR conference, shares her inspiring journey in the field of intellectual and developmental disabilities (IDD) support. Starting in 2018, she transitioned from hospital work to direct support, driven by a passion for helping others. Her role involves assisting individuals with daily routines, promoting independence, administering medications, and recognizing health concerns. Massalan emphasizes empathy, treating those she supports as she would her own family, and shares a powerful story of transforming a challenging relationship into a deep friendship. Her dedication and compassionate approach highlight the profound impact...

Melody Johnson, Director of Education and Professional Development at Arc of Monroe, shares her personal and professional journey in the field of intellectual and developmental disabilities (IDD). Growing up in a family that provided care for individuals transitioning out of institutions, Melody was deeply influenced by her mother’s progressive approach to fostering independence. Her career evolved from direct support professional (DSP) roles to leadership in workforce transformation and training. She discusses how COVID-19 reshaped training delivery, increasing accessibility through virtual platforms while also highlighting the trauma and isolation experienced by people with disabilities. Melody emphasizes the importance of tr...

In this IDD Perspectives webinar episode Dr. Craig Escudé and behavior analyst Ley Linder discuss the five core functions of behavior—access to items/activities, access to attention, escape, avoidance, and sensory/autonomic reinforcement—and emphasize that behaviors are typically multi-functional and require multidisciplinary approaches for effective support. They highlight the importance of recognizing behavioral changes as potential indicators of underlying medical issues, warning against diagnostic overshadowing. The conversation also stresses the value of empathy, human connection, and the critical role of direct support professionals in identifying subtle behavioral shifts. Practical tools, such as pattern recognition and the "duck philo...

Dr. Jack Dillenberg is a pioneering figure in public health and dentistry, known for founding the Arizona School of Dentistry and Oral Health with a focus on service, public health, and underserved communities. His career spans impactful roles including state health director in Arizona, global health work in Jamaica and India, and advocacy for individuals with intellectual and developmental disabilities. He championed innovations like tele-dentistry, dental therapy, and nutrition education in dental care, and collaborated with figures like Mother Teresa and Major League Baseball to promote health equity. His upcoming book, You Don’t Know Jack, But You Should, cap...

This IDD Health Matters podcast features a conversation between Dr. Craig Escudé and Ley Linder, focusing on a collaborative initiative called “Unlocking Behaviors.” This project, inspired by Dr. Rick Rader, aims to bridge the gap between medical and behavioral approaches when evaluating challenging behaviors in individuals with intellectual and developmental disabilities (IDD). The discussion emphasizes the importance of integrated healthcare, where medical, mental, oral, and behavioral health professionals work together to uncover the root causes of behaviors that may initially seem purely psychological but often have underlying medical explanations. Both speakers highlight the critical role of direct support professionals, who...

Dr. Anthony Rodriguez, featured on the IDD Health Matters podcast during the 2025 AAIDD Conference, shares his journey from a finance major to a full professor at Providence College, driven by a passion for supporting individuals with intellectual and developmental disabilities (IDD). His work blends mathematics education with advocacy, focusing on financial literacy and scam prevention to empower people with IDD. He highlights the importance of community-based research, peer mentoring, and storytelling as tools for growth and connection. As the incoming president of AAIDD, Rodriguez aims to foster collaboration among fellows and celebrate the organization's upcoming 150th anniversary, emphasizing unity, c...

This IDD Perspectives webinar episode features Dr. M. Dian Chin Kit-Wells, a board-certified pediatric dentist and president of the American Academy of Developmental Medicine and Dentistry. The discussion centers on the most common dental health concerns affecting individuals with intellectual and developmental disabilities (IDD). Topics include the systemic importance of oral health, gum disease, halitosis, tongue abnormalities, enamel erosion, and bruxism. The conversation emphasizes the connection between oral and overall health, the impact of medications, and the role of caregivers in maintaining dental hygiene. Practical advice is offered on prevention strategies, including brushing, flossing, dietary choices, and the use...

Rebecca Enders discusses supports and services for individuals with intellectual and developmental disabilities. Rebecca, a board-certified case manager and director of case management at Optimal Health Care in Maryland, outlines the importance of coordinated services, including Medicaid waivers, community integration, and support across the lifespan. Having transitioned from a 15-year career in education, Rebecca found renewed purpose in case management, eventually developing a data-driven acuity model called Atlas Acuity. This system assesses client needs using weighted metrics to calculate an acuity score, guiding the assignment of caseloads and preventing case manager burnout. Her approach emphasizes time allocation and service...

Carol Price Guthrie has spent over three decades working in the field of intellectual and developmental disabilities (IDD), beginning as a direct support professional in Tennessee. Her career journey includes roles in case management, program development, and managed care, with experience founding her own case management agency and contributing to projects at UnitedHealthcare. Currently, she serves as Senior Director of Waiver and Program Development at StationMD, a telehealth company specializing in medical services for individuals with IDD. Guthrie is deeply committed to health equity, advocating for specialized, ongoing training and personalized support that enables people with IDD to access...

Jean Phelps, CEO of Encompass Human Services, passionately advocates for expanding awareness and accessibility in services for individuals with intellectual and developmental disabilities. Her organization offers a wide range of supports, including residential, day, employment, and brain injury services, all designed to integrate individuals meaningfully into their communities. Jean emphasizes that the core qualifications for becoming a direct support professional are the everyday skills people use to live their own lives, coupled with a genuine spirit and desire to help others. She believes career growth within the field should be nurtured and supported, even if that means mentoring someone...

Dr. Susan Haverkamp, featured on the IDD Health Matters podcast, discusses her work on improving health equity for adults with intellectual and developmental disabilities (IDD). She highlights the lack of reliable national health data due to insufficient identification methods and advocates for simple survey questions to address this gap. Haverkamp also shares her role in creating core healthcare competencies through a Delphi study, stressing the importance of understanding the social model of disability, improving clinician communication and clinical skills, and recognizing implicit biases. She emphasizes recent progress in medical education, growing community-engaged research, and the need to mentor future...

In this episode of the IDD Health Matters podcast, Dr. Craig Escudé interviews Sharon Gomez, a passionate advocate and leader in the field of intellectual and developmental disability (IDD) services. Sharon shares her lifelong dedication to supporting individuals with IDD, tracing her journey from youth volunteerism with The Arc to executive leadership roles, including at Evergreen Life Services. She discusses the impact of landmark legal cases like the Gary W. lawsuit on improving community-based care and highlights ongoing challenges in healthcare access for people with complex medical needs. Sharon emphasizes the importance of properly trained healthcare professionals, the vital r...

In this episode of IDD Health Matters, host Dr. Craig Escudé interviews A.J. Forster, a professional with over a decade of experience supporting individuals with intellectual and developmental disabilities (IDD). Forster shares his journey from working in finance to becoming passionate about serving the IDD population through direct support and leadership roles. Now at Tarrytown Pharmacy, he helps streamline medication services for IDD providers, aiming to relieve the burden on nurses and staff by coordinating refills, prior authorizations, and emergency prescription needs. He emphasizes the importance of interdisciplinary teams, especially in managing psychotropic medications with regular reviews to avo...

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Wesley Anderson, Director of Employment and Community Services at the National Association of State Directors of Developmental Disabilities Services (NASDDDS). Live from Salt Lake City, they dive deep into the critical connection between employment and health outcomes for individuals with intellectual and developmental disabilities (IDD).

Wesley discusses his work co-leading the State Employment Leadership Network, a collaborative effort with 26 U.S. states aimed at integrating employment across all levels of support systems. Learn how employment isn’t just about earning a paycheck—it’s a power...

In this powerful episode of IDD Health Matters, Dr. Craig Escudé welcomes Kathryn Pears, Chief Operations Officer of the National Task Group on Intellectual Disabilities and Dementia Practices (NTG). With over 40 years of experience in the field of dementia, Kathryn shares her personal and professional journey, beginning with her father's early-onset Alzheimer's diagnosis, and how it ultimately led her to advocate for individuals with intellectual disabilities who are aging and at risk for dementia.

Kathryn discusses the groundbreaking work of the NTG, including their development of the Early Detection Screen for Dementia (NTG-EDSD)—a free, intuitive tool use...

In this powerful episode of IDD Health Matters, host Dr. Craig Escudé sits down with Dr. Mike Cummings, Vice Chair of Psychiatry at the University of Buffalo School of Medicine and Medical Director for several psychiatric programs across New York State. Dr. Cummings brings a wealth of experience from leading New York’s busiest psychiatric ER to developing innovative programs like START and APEC that provide person-centered psychiatric support for individuals with intellectual and developmental disabilities (IDD).

Together, they unpack the challenges of polypharmacy, the importance of understanding behavior as communication, and how to empower families and indi...

In this episode of IDD Health Matters, Dr. Craig Escudé is joined by Ricardo Ortega and Babar Nawaz of iCare Manager—an innovative electronic health record (EHR) company revolutionizing care for people with intellectual and developmental disabilities (IDD). Together, they explore how technology can improve efficiency, documentation, and most importantly, the quality of care delivered by providers across 25 states and counting.

Ricardo and Babar share their insights into the unique challenges of healthcare in the IDD field, such as state-specific compliance, staffing shortages, and underfunding. Learn how iCare Manager was built from the ground up—with direct input...

In this insightful episode of IDD Health Matters, Dr. Craig Escudé is joined by nurse educator Michael Sigelman, who brings a wealth of experience and passion to improving healthcare practices for people with intellectual and developmental disabilities (IDD). Michael shares how his early experiences shaped his career and how he now plays a crucial role in training registered nurses and direct support professionals across his state.

Together, they discuss the importance of structured nurse education, the value of trained medication employees (TMEs), and the essential role of accurate documentation in providing consistent and person-centered care. Michael also e...

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with long-time advocate and leader Shelly Chandler to explore a lifetime of service and passion in the field of intellectual and developmental disabilities (IDD). From growing up immersed in the world of special education to running provider agencies and leading the Iowa Association of Community Providers for 17 years, Shelly shares how her personal and professional journey continues to influence better health outcomes for individuals with IDD.

Recorded live at the Kansas InterHab Conference, this conversation dives into the challenges of bridging communication gaps between providers, h...

On this episode of IDD Health Matters, Dr. Craig Escudé sits down with two remarkable nurses—Patty Haberkorn and Deanna Cox—at the Illinois Developmental Disabilities Nurses Conference. With a combined four decades of experience supporting people with intellectual and developmental disabilities (IDD), Patty and Deanna share powerful insights into nursing, advocacy, communication, and the often-overlooked emotional rewards of this career path.

Patty, who began her journey as a nurse and now serves as Executive Director at Futures Unlimited, and Deanna, a dedicated nurse who found her calling in DD care after working in long-term care, both refle...

In this inspiring episode of IDD Health Matters with Dr. Craig Escudé, we welcome Tony Thomas, Executive Director of Welcome House in Cleveland, Ohio. With over 24 years of leadership experience, Tony shares his remarkable journey into the field of intellectual and developmental disabilities (IDD) — from a life-changing family discovery to a lifelong career dedicated to empowering individuals and advancing health equity.

Tony discusses how frontline Direct Support Professionals (DSPs) are the heart of the disability services field, his innovative initiatives to improve healthcare access for people with IDD, and how Welcome House is creating clear career pathways for...

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Dr. Alice Bacherini, a postdoctoral research fellow at the University of Perugia in Italy, to explore how psychological research is helping dismantle biases in healthcare for people with intellectual and developmental disabilities (IDD). Dr. Bacherini discusses her groundbreaking work developing tools to measure erroneous assumptions and self-efficacy among physicians when treating individuals with IDD. Together, they dive into how clinician attitudes impact health equity, the role of social dominance orientation in perpetuating stereotypes, and why direct interaction and inclusive communication are essential to better care outcomes. Duration: 00:13:21

In this powerful episode of IDD Health Matters, Dr. Craig Escudé sits down with longtime civil rights attorney, disability advocate, and former Acting Administrator of the Administration for Community Living, Alison Barkoff. Now serving as the Hirsch Health Law and Policy Professor at George Washington University’s Milken Institute School of Public Health, Alison shares her personal journey rooted in her experiences as a sibling of a person with an intellectual disability—and how that shaped her life’s mission to advance health equity, civil rights, and inclusion for people with intellectual and developmental disabilities (IDD).

Together, they ex...

In this powerful episode of IDD Health Matters, Dr. Craig Escudé sits down with renowned disability advocate Liz Weintraub to explore what true health equity looks like for people with intellectual and developmental disabilities (IDD). Liz, a senior policy specialist at the Association of University Centers on Disabilities (AUCD), brings her lived experience and professional expertise to the conversation—sharing insights on advocacy, accessible healthcare, and the importance of plain language in medical settings.

Liz discusses AUCD’s national impact through 62 university-based centers across the U.S. and territories, her work on Capitol Hill, and key legislative prior...

In this inspiring episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Ben Warner, a healthcare professional whose unique journey spans from dental practice to medical school—all fueled by a lifelong desire to serve those with the greatest needs.

Dr. Warner shares how his early experiences volunteering in hospitals sparked a deep commitment to healthcare and how that commitment evolved from dentistry to medicine. His story is one of resilience, family support, and a calling to provide equitable, compassionate care for individuals with intellectual and developmental disabilities (IDD).

Now a board mem...

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Richard Chapman, Assistant Director for Disability Leadership at the Partnership for People with Disabilities in Richmond, Virginia. With a background in mental health counseling and a deep commitment to advancing equity, Richard shares his journey and current work at the intersection of mental health and self-determination for people with intellectual and developmental disabilities (IDD).

Richard dives into how increasing self-determination—the ability for individuals to make their own life choices—can lead to better mental health outcomes and an improved quality of life. He discu...

In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with Eddie Tuduri, a world-class drummer whose career included playing with legends like The Beach Boys, Loggins & Messina, Del Shannon, and Ricky Nelson. But in 1997, a life-altering accident left him paralyzed—an event that ultimately led him to create the Rhythmic Arts Project (TRAP), a groundbreaking program that uses rhythm and percussion to enhance learning, communication, and rehabilitation for individuals with intellectual and developmental disabilities (IDD).

Eddie shares his inspiring story of resilience, the impact of music in therapy, and how his passion for...

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Rachel Potts, a dedicated nurse and Director of Nursing for ICF homes, to discuss the challenges and rewards of providing healthcare for individuals with intellectual and developmental disabilities (IDD). Rachel shares her journey into the field, beginning as a school nurse for children with autism, and how she quickly developed a passion for understanding and communicating with non-verbal individuals.

Throughout the conversation, Rachel and Dr. Escudé explore the critical need for better training and resources for healthcare professionals, the importance of observation skills in di...

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Chris Helfrich, a dedicated nurse and an integral member of the Developmental Disabilities Nurses Association, live from the DDNA annual conference in New Orleans. Chris shares her unexpected journey into the field, her experiences navigating healthcare for individuals with developmental disabilities, and the critical need for better education and training for healthcare providers.

Chris also discusses her groundbreaking work in Illinois, where she has been instrumental in opening specialized community-based homes for individuals with Prader-Willi syndrome. She highlights the challenges of healthcare disparities, the i...

In this dynamic episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Bob Sattler—whose extensive experience and passion for person-centered care have transformed developmental disability services. Recorded live at the NASD Conference in Portland, Oregon, this conversation delves into Bob’s unique journey from a camp counselor and direct support professional to a pioneering consultant and co-founder of Support Development Associates (SDA).

Bob Satler shares how his career evolved alongside the movement toward true person-centered practices, emphasizing that treating individuals as people first is far more than a buzzword—it’s a transfor...

In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with John Silfies, keynote speaker at the Kansas InterHab Conference and founder of Silfies Media, a company dedicated to making the developmental disabilities (DD) field famous.

John shares his journey from Direct Support Professional (DSP) to marketing expert, emphasizing the power of storytelling in raising awareness, attracting new professionals, and celebrating the lives of individuals with disabilities. He discusses how his media company helps provider agencies, government organizations, and local communities by crafting impactful videos and social media campaigns that highlight the real s...

On this episode of IDD Health Matters, Dr. Craig Escudé sits down with Johnathon Crumley, Chief Operations Officer of IntellectAbility, to discuss his unexpected journey into the field of intellectual and developmental disability (IDD) support. Originally planning a career as a military chaplain, Jonathan's path shifted when he discovered his passion for improving services and quality of life for individuals with IDD. In this insightful conversation, Johnathon shares how person-centered thinking, proactive healthcare approaches, and celebrating small wins can transform support systems. He also dives into the critical work IntellectAbility is doing to provide tools, training, and resources that e...

In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Sharon Parker Love, a nurse with 56 years of experience, to discuss her journey in the field of intellectual and developmental disabilities (IDD) nursing. Recorded at the Illinois Developmental Disabilities Nurses Association Conference, Sharon shares her remarkable career—from starting with a state grant program to dedicating over three decades to Trinity Services, where she has helped individuals with dual diagnoses and complex medical needs.

Sharon dives into her work in crisis prevention, recounting heartbreaking and inspiring stories of individuals in need, including an individual who spent eig...

Welcome to another insightful episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility. In this episode, we explore pioneering approaches to healthcare for individuals with intellectual and developmental disabilities. Join us as Dr. Escude welcomes two distinguished guests from the international arena: Professor Angela Hassiotis from University College London and Dr. Rory Sheehan from King's College London.

Professor Hassiotis, a seasoned consultant psychiatrist in the NHS, delves into her groundbreaking research and clinical work aimed at personalizing interventions for aggressive challenging behaviors in adults with IDD. She shares the promising beginnings o...

In this insightful episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility, welcomes Dr. Brandi Kelly, the Clinical Director for Louisiana's Developmental Disability Office. Dr. Kelly discusses her pivotal role in overseeing the state's virtual Resource Center, focusing on enhancing community and provider skills to better serve individuals with co-occurring intellectual, developmental, behavioral, and complex medical needs. Highlighting the unique challenges and innovative solutions in Louisiana, Dr. Kelly shares her personal connection to the field through her sister's experiences and emphasizes the importance of wellness, relationships, and clear communication in healthcare. Join us a...

Welcome to another enlightening episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility, where we delve into health, wellness, and equity for individuals with intellectual and developmental disabilities. In this episode, we are joined by the talented Cody Clark, a magician and autistic self-advocate from Louisville, Kentucky. From a magical beginning in Gulf Shores, Alabama, Cody shares how a family vacation and an inspiring stage moment sparked his journey into the world of magic at the age of eleven. This episode isn't just about tricks; it's about transformation and advocacy. Cody discusses how e...

Join Dr. Craig Escude in this enlightening episode of IDD Health Matters as he sits down with Robert Scholz from the University of New Hampshire's Institute on Disability. Robert shares in-depth insights into the National Center for START Services, a pioneering program designed to provide mental health support and crisis prevention for individuals with intellectual and developmental disabilities (IDD). Starting in the late 1980s in Massachusetts, START has expanded nationwide, aiming to address healthcare disparities and improve access to mental health services for the IDD community. Listen as Robert discusses the program's origins, its evolution, and the real-world impact...

In this compelling episode of IDD Health Matters, Dr. Craig Escudé sits down with Cathy Service, a nurse practitioner with decades of experience in the field of intellectual and developmental disabilities (IDD). Cathy shares her inspiring journey, from her early days working in a state institution to becoming a leader in dementia care for individuals with IDD.

Listen as Cathy discusses the challenges and triumphs of transitioning from institutional care to community-based supports, the importance of education and training for healthcare providers, and her pioneering work in dementia care. She emphasizes the need to honor each individual's u...

In this inspiring episode of the IDD Health Matters Podcast, Dr. Craig Escude is joined by three dedicated occupational therapists from UC Health at the University of Colorado. Bree Williams, Kelly Corley, Margaret Ries share their journeys into the field of occupational therapy and their specific involvement with individuals with intellectual and developmental disabilities (IDD). They delve into the details of the Sunflower Program, an initiative they’ve pioneered to enhance the hospital experience for patients with IDD. The therapists discuss innovative methods they employ, such as holistic evaluations and tailored environmental adjustments, to ensure comprehensive care. This conversation no...

In this episode of IDD Health Matters, Dr. Craig Escudé is joined by Bethany Toledo and Becky Watson from the Ohio Alliance of Direct Support Professionals (OADSP). Together, they discuss the vital role of Direct Support Professionals (DSPs) in supporting individuals with intellectual and developmental disabilities. Bethany and Becky share OADSP's mission to educate, elevate, and empower DSPs through innovative programs like DSP University, which introduces high school students to the profession via education and hands-on experience.

Explore the credentialing pathways, leadership development initiatives, and advocacy efforts that are transforming the DSP field. From state-wide programs like t...

In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé sits down with Dr. David Fray, a trailblazer in dentistry and healthcare for individuals with intellectual and developmental disabilities (IDD). Dr. Fray shares his inspiring journey, from growing up in a disability-friendly household to a career that has spanned private practice, teaching, global health initiatives, and leadership roles in state and international healthcare systems.

Together, they discuss the importance of collaborative care, the need for person-centered and lifespan-focused health planning, and the transformative power of cultural empathy in supporting individuals with IDD. Dr. Fray a...

In this special episode of IDD Health Matters, Dr. Craig Escudé is joined by John Dickerson, a lifelong advocate and innovator in the field of supports and services for individuals with intellectual and developmental disabilities (IDD). Recorded live at the NASDDDS conference in Portland, Oregon, John shares his inspiring journey that began in 1973 with The Arc, his commitment to empowering individuals with IDD, and the pivotal moments that shaped his career.

John discusses the creation of Quillo, a transformative platform designed to inspire and educate families, individuals, and staff through microlearning. Learn how Quillo is addressing key c...

In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé welcomes Kelley Shepherd, a dedicated Direct Support Professional (DSP) with over 15 years of experience. Kelley shares her perspective on what it means to truly support individuals with intellectual and developmental disabilities (IDD) in living their best lives.

From advocating for dignity of risk to respecting personal choices and supporting meaningful growth, Kelley emphasizes the importance of seeing every individual’s unique potential. She shares inspiring stories of empowerment, such as helping individuals explore new experiences and advocating for person-centered care during healthcare visits.

Kel...

In this heartfelt episode of IDD Health Matters, Dr. Craig Escude sits down with Deb Davis, a dedicated nurse and advocate for individuals with intellectual and developmental disabilities (IDD). Deb shares her inspiring journey into the field of IDD support, reflecting on how she found her calling and became a champion for person-centered care.

Deb discusses the challenges of working in this field, including her early experiences, the importance of person-centered thinking, and how she overcame feelings of being unprepared to become an expert through relentless learning and certification with the Developmental Disabilities Nurses Association (DDNA). She...

In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé is joined by Julie Foster Hagan, Louisiana’s State Director of Developmental Disability Services. Recorded live from the NASDDDS conference, Dr. Escudé and Julie discuss the vital work being done to enhance health equity and employment opportunities for individuals with intellectual and developmental disabilities. Julie shares insights into Louisiana’s health equity initiatives, including a strategic focus on data collection and the role of Health Equity Action Teams within the state’s Department of Health. She highlights the impact of the American Rescue Plan Act, enabling projects...

In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Mary Brogan, the state director for developmental disability services in Hawaii. Mary shares her extensive experience managing programs that impact individuals with intellectual and developmental disabilities (IDD), including the oversight of the 1915(c) Medicaid Waiver and neurotrauma services. She highlights the unique challenges of providing dental care and the importance of accessible health services tailored to meet the needs of people with IDD in Hawaii.

Mary and Dr. Escudé dive into the critical importance of person-centered practices and how a preventative, systematic approach to healthcare can va...

In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé is joined by John Raffaele, Director of Educational Services at the National Alliance for Direct Support Professionals (NADSP), for a candid conversation about the evolving role of direct support professionals (DSPs) and their impact on the lives of people with intellectual and developmental disabilities (IDD). Recorded live from the NADSP Annual Conference in Pittsburgh, this episode dives deep into the unique challenges and responsibilities DSPs face and how the industry is working toward elevating their role from entry-level caretakers to respected professionals. John sheds light on NADSP’s m...

In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé welcomes Valerie Bradley, a pioneer in the intellectual and developmental disabilities (IDD) field. Valerie is the president and co-founder of the Human Services Research Institute (HSRI), an organization dedicated to advancing policies and practices in human services. With over four decades of experience, Valerie has been at the forefront of deinstitutionalization efforts, working to move individuals with IDD from large institutions into more community-based, supportive environments. Her expertise and passion for improving the quality of life for individuals with disabilities have earned her a significant reputation i...

In this episode of IDD Health Matters, host Dr. Craig Escudé is joined by Valerie Chadwick, the Health Advocacy Director at The Arc of Philadelphia. Valerie shares her journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD), highlighting her initial hesitance and eventual drive to become more engaged with this underserved population. Valerie talks about her role at The Arc, where she oversees a program that helps medical and health students interact with individuals with disabilities, fostering understanding and competence in providing inclusive care.

Together, they discuss the importance of training healthcare p...

Join Dr. Craig Escudé on IDD Health Matters as he welcomes Dr. Kelly Nye-Lengerman, a seasoned social worker and the Director at the University of New Hampshire's Institute on Disability. In this episode, Dr. Nye-Lengerman delves into her work at the institute, focusing on increasing inclusion and belonging across the lifespan and experiences of disability. With a rich background in both direct support and academic leadership, she offers a unique perspective on the intersection of intellectual disability and mental health, emphasizing the importance of community-based support systems and professional education to improve the quality of life for people with d...

In this episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Michele Cantanzerite, Chief Medical Officer at Achievable Health, a federally qualified health center in Culver City, California. Together, they dive into Michele’s journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD). From a chance start to now leading a healthcare facility dedicated to improving the lives of individuals with IDD, Michelle reflects on the challenges and rewards of working in this specialized field, where communication and humility play crucial roles in delivering patient-centered care. Michele highlights the unique mission of...

In this episode of IDD Health Matters, Dr. Craig Escude is joined by Dr. Toni Benton, a professor and medical director at the University of New Mexico's Family Medicine department. Together, they dive into the complexities of healthcare for individuals with intellectual and developmental disabilities. Dr. Benton shares insights about her work with the Transdisciplinary Evaluation and Support (TES) Clinic, a program that's been providing innovative, community-based care for over 30 years.

Dr. Benton explains how her team, which includes medical professionals, social workers, and various specialists, provides comprehensive evaluations for individuals across New Mexico. The TES Clinic...

In this episode of *IDD Health Matters*, Dr. Craig Escudé welcomes Ann Hardiman, Chief Innovation Officer at the New York Alliance for Inclusion and Innovation. Ann shares her journey into the field of intellectual and developmental disabilities (IDD), which was shaped by personal experiences with mental health in her family. The discussion begins with Ann's involvement during the early days of deinstitutionalization, when people with IDD were transitioning from institutional settings to community-based living. Ann reflects on the significant improvements in quality of life that resulted from this movement, as well as the challenges that persist, particularly in the r...

Dr. Carl Tyler is a leading figure in the field of healthcare for individuals with intellectual and developmental disabilities (IDD). He is the current president of the American Academy of Developmental Medicine and Dentistry (AADMD), an organization dedicated to improving healthcare for people with IDD through education, advocacy, and policy efforts. Dr. Tyler is also a professor of family medicine at the Cleveland Clinic, where he plays a key role in training healthcare providers, including residents, on how to care for individuals with IDD.

His career began during the deinstitutionalization movement in Ohio, and over time, he...

Welcome to another insightful episode of the IDD Health Matters Podcast with Dr. Craig Escude. In this episode, Dr. Escude is joined by two remarkable guests, Nanette Wrobel and Jessica Jacobs from Tarrytown Expocare Pharmacy, a leading provider of pharmacy services for individuals with intellectual and developmental disabilities (IDD).

Nanette, a seasoned pharmacist with nearly 40 years of experience, and Jessica, a pharmacy technician with a strong background in mental health and IDD, share their unique journeys into the IDD field. They discuss the critical role that specialized pharmacy services play in supporting individuals with IDD, emphasizing the...

Join Dr. Craig Escude in this insightful episode of IDD Health Matters, recorded live from the ANCOR conference in Chicago. In this episode, Dr. Escude welcomes Catherine Thibedeau, who shares her remarkable journey from entering the field of supports and services for people with intellectual and developmental disabilities (IDD) by necessity, to becoming the executive director of Independence Advocates of Maine. Catherine discusses the array of services her agency provides and highlights her dual role in influencing policy and professional development through state and national provider networks.

Catherine's story illustrates the career opportunities within the IDD service...

In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Art Dykstra, a veteran in the field of intellectual and developmental disabilities (IDD). Art, who currently serves as the director of the Trinity Foundation and has previously led Trinity Services as CEO, shares his inspiring journey from an unexpected start in the IDD field to becoming a pivotal figure in providing support and resources for individuals with disabilities across Illinois.

Art's story begins with a simple job posting that led him to work with a young man with autism, a transformative experience that steered h...

In this insightful episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Karyn Harvey, a passionate advocate for trauma-informed care in the field of intellectual and developmental disabilities (IDD). Recorded live from the ANCOR conference, Karyn shares her deep understanding of the behavioral challenges often faced by individuals with IDD, revealing how these behaviors are frequently symptoms of unrecognized trauma, such as post-traumatic stress disorder (PTSD).

Karyn discusses the critical need for access to therapeutic support for those with IDD, emphasizing the profound impact of trauma on their mental health. She delves into...

In this episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Meera Gandhi, the dedicated Clinic Director at Kramer Davis Health Clinic in Nashville. Meera shares her inspiring journey, from coaching Special Olympics athletes in California to becoming a passionate advocate and leader in healthcare for people with intellectual and developmental disabilities (IDD). She discusses how her early experiences shaped her career and led her to Kramer Davis Health, where she now plays a pivotal role in providing comprehensive care.

Dr. Escude and Meera delve into the unique, holistic approach of Kramer Davis...

In this insightful episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude, we welcome Dr. Steven Merahn, Medical Director at Partnership Solutions, to discuss the crucial aspects of healthcare and support services for people with intellectual and developmental disabilities (IDD). Dr. Merahn shares his journey from medical school at Albert Einstein College of Medicine to his current role, highlighting the pivotal moments that shaped his dedication to this field.

Dr. Merahn delves into the significance of understanding diversity of ability rather than viewing it as a disability, stressing the importance of adapting environments to...

Join Dr. Craig Escude in this insightful episode of IDD Health Matters, where we explore health, wellness, and health equity for individuals with intellectual and developmental disabilities (IDD). Our special guest, Natalie Symons, a dedicated registered nurse and the director of the Milestone Health Care Quality Unit (HCQU) in Western Pennsylvania, shares her extensive experience and innovative approaches to supporting individuals with IDD.

In this episode, Natalie discusses her role in providing training and technical assistance to agencies across nine counties in Pennsylvania. She highlights the critical work her team does, including offering over 250 medical and behavioral...

Welcome to another episode of the IDD Health Matters Podcast with Dr. Craig Escudé. In this episode, Dr. Escudé is joined by Terry Broda, a seasoned nurse consultant with over 30 years of experience in the field of intellectual and developmental disabilities (IDD). Terry shares her unique journey into the field, which began unexpectedly and evolved into a lifelong passion.

Together, they delve into critical topics such as health equity, the importance of understanding medical issues like constipation and seizures, and the vital role of proper diagnosis in improving the quality of life for individuals with IDD. Terry's ex...

In this episode of IDD Health Matters, Dr. Craig Escude is joined by Elizabeth Martin, the CEO of Living Resources, recorded live at the New York Alliance for Inclusion and Innovation annual conference. Elizabeth shares her experiences and insights since joining Living Resources in September 2020, navigating the challenges of the pandemic and her transition from working with physical disabilities to intellectual and developmental disabilities (IDD).

Elizabeth details the wide array of services offered by Living Resources, an organization with nearly 50 years of history in empowering individuals with disabilities. She highlights their residential programs, day programs, community habilitation...

Welcome to another episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude. In this episode, Dr. Escude talks with Eric Pines, Esq., a nationally recognized federal employment lawyer, mediator, and attorney business coach. Eric discusses his work in advocating for reasonable accommodations for federal employees, particularly veterans, and those with disabilities.

Eric Pines provides insights into his legal practice, emphasizing the importance of understanding and asserting one's rights under laws such as the Americans with Disabilities Act (ADA) and the Rehabilitation Act. He shares real-world examples, including helping veterans with PTSD secure work-from-home arrangements...

Welcome to "IDD Health Matters," the podcast dedicated to exploring health, wellness, and health equity for individuals with intellectual and developmental disabilities. Hosted by Dr. Craig Escude, each episode delves into the unique challenges and innovative solutions within this specialized field of healthcare.

In this episode, Dr. Escude takes a road trip to Hermitage, just outside of Nashville, to visit Dr. Matt Holder, the driving force behind Kramer Davis Health. Dr. Holder shares his journey from the Lee Specialty Clinic in Louisville, Kentucky, to establishing Kramer Davis Health, a pioneering transdisciplinary outpatient healthcare center dedicated to adults...

Welcome to another insightful episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude. In this episode, we delve into the critical aspects of health, wellness, and equity for individuals with intellectual and developmental disabilities (IDD). Our special guest, Ernest "Ernie" McNutt, joins us from the New York Alliance for Inclusion and Innovation, where he plays a pivotal role in care coordination for people with IDD.

Ernie shares his journey into the field, which began during his college days working in a group home. He discusses the evolution of care coordination organizations (CCOs) in New...

Join Dr. Craig Escude on this enlightening episode of "ID Health Matters," where we delve into health, wellness, and health equity for individuals with intellectual and developmental disabilities. In today's episode, we are thrilled to welcome Dr. Harold Reitman, affectionately known as "Hackie," joining us from Fort Lauderdale, Florida. Dr. Reitman shares his inspiring journey from a young aspiring doctor in Jersey City to becoming a renowned orthopedic surgeon and an advocate for neurodiversity.

Listen as Hackie recounts his unique path through medical school, his unexpected venture into the world of boxing as a Golden Gloves champion...

Welcome to the IDD Health Matters Podcast with Dr. Craig Escude, where we explore health, wellness, and health equity for individuals with intellectual and developmental disabilities (IDD). In this episode, Dr. Escude hosts Lorene Reagan, a seasoned professional with 40 years of experience in IDD nursing.

Lorene shares her journey into the field, which began by chance in 1984 when she took a job at a school for children with IDD. She describes her diverse career, from clinical nursing and working in group homes to serving as the Nurse Coordinator for the New Hampshire Department of Health and Human...

In this episode of IDD Health Matters, host Dr. Craig Escude is joined by Adam White from TruFit, a company dedicated to creating adaptive health and wellness solutions for individuals with intellectual, developmental, and physical disabilities. Adam discusses the innovative TruFit app, which customizes exercise programs and activities based on individual needs, offering a holistic approach to health that includes physical fitness, emotional wellness, life skills training, and nutrition. The conversation covers TruFit's pilot programs in schools and collaborations with nonprofit organizations, assisted living homes, and therapy providers, aiming to enhance the overall well-being of people with disabilities. Adam...

In this engaging episode of IDD Health Matters, Dr. Craig Escude welcomes Patrick Paul, a dynamic leader in the field of intellectual and developmental disabilities, at the New York Alliance for Inclusion and Innovation conference. Patrick, the seasoned Executive Director/CEO of Anderson Center for Autism, and shares his comprehensive journey from being a CPA conducting audits for the organization to leading it. He delves into the challenges and successes faced by those with autism, particularly around accessing healthcare and the risk of diagnostic overshadowing—a critical issue highlighted by a recent Joint Commission alert. Throughout the discussion, Patrick ou...

In this engaging episode of "IDD Health Matters," Dr. Craig Escude, broadcasting from the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado, delves into the innovative integration of dental and occupational therapy for patients with intellectual and developmental disabilities. His guests, Dr. Meelin D. Chin Kit-Wells DDS, M.Ed., a pediatric dentist, and Elizabeth Thompson, an occupational therapist, share their pioneering approach to specialized dental care.

Dr. Wells highlights the unique setup of their practice, which incorporates a full-time occupational therapist to enhance patient care. This collaboration has proven essential in understanding and meeting...

Welcome to another enlightening episode of IDD Health Matters, where we delve into crucial health topics for individuals with intellectual and developmental disabilities. In today's episode, sponsored by Neurocrine Biosciences, we shed light on the often overlooked issue of Tardive Dyskinesia (TD) in people with IDD. Join Dr. Craig Escude as he welcomes Dr. Sharon Cahoon-Metzger, an expert in the field, to explore the burden and impact of TD.

Dr. Cahoon-Metzger expertly guides us through the complexities of TD, describing it as a condition characterized by abnormal involuntary movements resulting from prolonged use of certain medications. She...

In this episode of IDD Health Matters, Dr. Craig Escude welcomes Andrew Kelly to discuss health services for individuals with intellectual and developmental disabilities (IDD). With a background in healthcare insurance and pharmacy management, Kelly shares his unintentional but impactful journey into the IDD field. Initially joining a pharmacy owned by a large agency, he moved through various roles that emphasized the importance of accessible and effective medication management for IDD individuals. His career progression led him to a technology-based company, where he currently focuses on improving documentation and operational efficiencies through electronic health records and other tech solutions.<...

In this enlightening episode of IDD Health Matters, Dr. Craig Escude engages with two specialists, Dr. Jennifer Lecomte and Dr. Wendy Aita, who are making significant strides in healthcare for individuals with intellectual and developmental disabilities. The discussion centers on their innovative practice in Southern New Jersey, which uniquely integrates primary medical care with behavioral health services.

Key Discussion Points:

Interdisciplinary Care: Dr. Jennifer Lecomte, a med-peds physician, outlines her practice's approach to providing comprehensive care for patients with both intellectual disabilities and mental health conditions. This includes embedded behavioral health within the primary care...

In this enlightening episode of IDD Health Matters, host Dr. Craig Escude is joined by Lisa Burck from The Arc of Mississippi. With decades of experience in the field of intellectual and developmental disabilities (IDD), Lisa shares her profound insights into the dynamic and responsive nature of advocacy work. The conversation delves into the multifaceted roles that The Arc plays in Mississippi, from handling abuse investigations and training direct support professionals, to innovative programs like their Archangel Christmas initiative and addiction programs tailored for community integration challenges.

Lisa highlights the transformative power of supported decision-making—a dignified al...

In this insightful episode of the IDD Health Matters Podcast, host Dr. Craig Escude welcomes Joe MacBeth, President and CEO of the National Alliance for Direct Support Professionals (NADSP), to discuss the crucial role and challenges of direct support professionals (DSPs) in supporting individuals with intellectual and developmental disabilities. Joe shares the origins and mission of the NADSP, founded in the mid-1990s with an influential push from John F. Kennedy Jr., focusing on advocating for the direct support workforce amidst ongoing workforce issues.

The conversation delves into the persistent systemic failures to adequately address workforce challenges...

Kirsten Sanchirico is the Vice President of Workforce Advancement at the NY Alliance for Inclusion and Innovation. Starting as a Direct Support Professional in 1993 and in her current role, Kirsten has focused on the facilitation of cultural change in the delivery of services for individuals living with intellectual disabilities. Leading The Regional Centers for Workforce Transformation (RCWT), Kirsten has worked in partnership with The Office for People With Developmental Disabilities (OPWDD) and other stakeholders on Direct Support Professional (DSP) workforce development by integrating the NYS DSP and Front Line Supervisor Core Competencies, as well as, the NADSP Code of...

In this enlightening episode of IDD Health Matters, Dr. Craig Escude is joined by Dina Pizzurro-Smith, BSN, RN, CDDN, Director of Client Services at IntellectAbility, and Daleigh Tallent, MSN, RN, CDDN, Clinical Quality Coordinator at IntellectAbility. Both guests share their unique journeys into the field of nursing for individuals with intellectual and developmental disabilities (IDD), highlighting the challenges and rewards that come with serving this underserved population.

Dina and Daleigh discuss the critical need for specialized training and education for nurses in the IDD field, emphasizing the lack of IDD-specific content in traditional nursing curricula. They explore...

In this enlightening episode of IDD Health Matters, host Dr. Craig Escude sits down with Dr. Owen Doody, an Associate Professor at the University of Limerick and a registered Intellectual Disability Nurse. Dr. Doody shares his extensive experience and passion for intellectual disability nursing, a field he has been dedicated to since qualifying in 1997. With a career spanning over three decades, Dr. Doody has made significant contributions to nursing management, education, and research, focusing on the well-being of individuals with intellectual disabilities and their families.

Recorded at the Developmental Disabilities Nurses Association annual conference in New Orleans...

In this episode of IDD Health Matters, Dr. Craig Escude welcomes Patricia Calandra, a passionate advocate for individuals with intellectual and developmental disabilities. Broadcasting from the New York Alliance for Inclusion and Innovation conference, they delve into Patricia's personal journey as a parent of two adult children with autism, her role as a self-direction broker, and her innovative work as a Master Housing Navigator.

Patricia shares her family's experiences navigating the complexities of self-direction and residential living, highlighting the challenges and triumphs of seeking independence and appropriate support for her children. She emphasizes the importance of personalized...

In this enlightening episode of IDD Health Matters, host Dr. Craig Escude welcomes David Ervin, a seasoned expert in the field of supports and services for individuals with intellectual and developmental disabilities (IDD). With a career sparked by a pragmatic need that turned into a lifelong passion, Ervin shares his journey from a direct support professional to becoming the CEO of a community-based organization in Rockville, Maryland, named Mome. This episode delves into the critical importance of health equity, wellness, and the development of health care systems tailored to the unique needs of the IDD community.

David...

In this enlightening episode of IDD Health Matters, host Dr. Craig Escude engages in a captivating conversation with Rick Guidotti, a former fashion photographer turned advocate for changing perceptions of beauty. Guidotti, the founder of Positive Exposure, shares his journey from capturing the glitz and glamour of the fashion world to spotlighting the unique beauty of individuals with intellectual and developmental disabilities (IDD). Positive Exposure, a nonprofit organization, leverages photography, film, and educational programs to foster a more inclusive society by celebrating human diversity and challenging the stigmas associated with IDD.

Guidotti recounts his pivotal moment of...

In this episode of IDD Health Matters, Dr. Craig Escude welcomes back Dr. Seth Keller for a deep dive into the latest advancements in the treatment and understanding of dementia, particularly in individuals with intellectual and developmental disabilities. Dr. Keller, a seasoned expert in neurology with a focus on Alzheimer's disease, shares groundbreaking insights into the diagnosis and management of dementia, emphasizing the significant strides made in research over the past few years.

The conversation begins with an overview of the challenges faced in diagnosing Alzheimer's disease, highlighting the shift towards more accurate diagnostic methods through biomarkers...

Join Dr. Craig Escude on a compelling episode of IDD Health Matters, where he engages in an enlightening conversation with Cathy Ficker Terrill, a seasoned expert with 48 years of experience in the field of supports and services for people with intellectual and developmental disabilities (IDD). This episode delves into Cathy's extensive career, highlighting her roles from a direct support professional to an influential figure in promoting inclusion, quality, and employment within the IDD community.

Cathy shares transformative stories and insights from her journey, including her pivotal role as a court monitor in a landmark case that led...

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The podcast "IDD Health Matters" hosted by Dr. Craig Escude features an episode with Dr. Beau Ances, an adult neurologist specializing in adults with Down syndrome, particularly focusing on the early detection of Alzheimer's disease in this population. Dr. Ances explains that individuals with Down syndrome are at a higher risk of developing Alzheimer's disease at a younger age due to having three copies of chromosome 21, which leads to an overproduction of amyloid precursor protein, a hallmark of Alzheimer's.

Key points discussed in the episode include:

Early Signs of Alzheimer's in Down Sy...

Welcome to another insightful episode of IDD Health Matters, hosted by Dr. Craig Escude, a renowned expert in the field of Intellectual and Developmental Disabilities (IDD) healthcare. In this episode, we are honored to have Tony Stuart, the dynamic CEO of Friends for Life, as our special guest.

Tony Stuart, a visionary leader and advocate in the IDD community, joins Dr. Escude to discuss the transformative work being done at Friends for Life. This organization is at the forefront of providing support and resources to individuals with intellectual and developmental disabilities, ensuring they lead fulfilling and empowered...

In this enlightening episode of IDD Health Matters, Dr. Craig Escude welcomes Dr. Seth Keller, a neurologist specializing in the care of adults with neurological complications, including those with intellectual and developmental disabilities (IDD). The episode, recorded at the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado, delves into Dr. Keller's journey in the field, his insights on health equity, and his extensive work on dementia, particularly in individuals with Down Syndrome.

Key Topics Covered

Dr. Keller's Background and Evolution in IDD Care: Dr. Keller shares his transition from a general adult...

In this insightful episode of "IDD Health Matters," host Dr. Craig Escude engages in a profound conversation with Suzanne Meiklejohn, a seasoned professional in the field of intellectual and developmental disabilities (IDD). With over 38 years of experience, Suzanne shares her journey from starting as a Direct Support Professional to her current role overseeing operations at Schenectady ARC.

Key Discussions:

Career Journey: Suzanne recounts her unexpected entry into the field of IDD support and services, highlighting her progression through various roles and the deep fulfillment she found in her work.

Impact of COVID-19: The...

In this insightful episode of IDD Health Matters, host Dr. Craig Escude engages in a deep and meaningful conversation with Dr. Benjamin Margolis, MD, a colleague and expert in neurobehavioral care for individuals with intellectual and developmental disabilities (IDD). Dr. Margolis, who also specializes in psychiatry and neurology, shares his journey into the field of IDD, highlighting the importance of understanding and addressing the unique health needs of this population. Throughout the episode, Dr. Margolis emphasizes the critical role of communication in providing effective care. He discusses the challenges and rewards of working in this specialized area, including the...

In this enlightening episode of IDD Health Matters, host Dr. Craig Escude welcomes a remarkable guest, BJ Stasio, an advocate renowned for his work in the field of intellectual and developmental disabilities (IDD). BJ's journey is not just inspiring but also a beacon of hope and empowerment for many in the IDD community.

Throughout the episode, BJ shares his personal experiences and challenges, shedding light on the unique healthcare needs and barriers faced by individuals with IDD. His stories are a powerful testament to the importance of self-advocacy and the need for inclusive healthcare practices.

...

In this enlightening episode of IDD Health Matters, Dr. Craig Escude engages in a thought-provoking conversation with two distinguished guests, Alexandra Bonardi and Lindsay DuBois. The episode delves into the intricacies of health, wellness, and health equity for individuals with intellectual and developmental disabilities.

Key Discussions:

Lindsay DuBois' Mission: Lindsay emphasizes the importance of conducting meaningful research that directly benefits people with disabilities. She advocates for research that leads to actionable insights, aiming to transform systems for better accessibility and understanding. 

Alexandra Bonardi's Focus: Alexandra discusses her commitment to improving service systems for p...

The podcast "IDD Health Matters," hosted by Dr. Craig Escude, features guest Maulik Trivedi. In this episode, the discussion revolves around important health-related topics concerning individuals with intellectual and developmental disabilities (IDD). Dr. Escude, an expert in the field, leads an insightful conversation with Maulik Trivedi, who brings his unique perspectives and experiences to the table. Throughout the episode, they delve into various aspects of healthcare for people with IDD, addressing challenges, innovations, and best practices. The conversation touches on the importance of personalized care, the role of technology in enhancing healthcare delivery, and strategies for improving the overall...

In this enlightening episode of IDD Health Matters, Dr. Craig Escude welcomes Ron Wakefield, the State Director for Developmental Disability Services in Georgia. Broadcasting from the NASDDDS (National Association of State Directors of Developmental Disability Services) conference, this conversation delves into the complexities and triumphs of providing services for individuals with intellectual and developmental disabilities.

Key Highlights:

Role and Responsibilities: Ron Wakefield discusses his role as the State Director, emphasizing the importance of stakeholder engagement, policy development, and ensuring access to necessary services for about 14,000 individuals under two waivers in Georgia. Focus on Health and...

In this inspiring episode of IDD Health Matters, Dr. Craig Escude engages in a profound conversation with Justin Steinberg, a research assistant at Stanford University, a board member of the American Academy of Developmental Medicine and Dentistry (AADMD), and a Special Olympics athlete and leader. At 33, Justin's journey is a testament to resilience and multifaceted talent.

Key Highlights: Justin's Background: Justin shares his journey, highlighting his roles as a research assistant, a self-advocate representative, a percussionist in a symphonic band, and his involvement in Special Olympics. Despite being on the autism spectrum and visually impaired, Justin has...

Dr. Craig Escude introduces the podcast "IDD Health Matters," focusing on health, wellness, and health equity for people with intellectual and developmental disabilities (IDD). Melissa DiSipio, the guest for the episode, is welcomed. Melissa DiSipio is the director of Philadelphia Coordinated Healthcare (PCHC), a unique program in Pennsylvania. PCHC, part of eight Healthcare Quality Units in the state, was established over 30 years ago to bridge the gap between providers, families, and individuals needing access to community healthcare professionals. HICUs provide indirect services, including education, training (both in-person and online), consultation, record reviews, and assistance in transitions for individuals with...