Living with Parkinson’s | Bryce Perry

Let’s talk about sex. Yeah, even with Parkinson’s. Not exactly the kind of thing you hear in a neurologist’s office, right? But if you’ve noticed changes in desire, performance, comfort, or confidence—you are not alone.

In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I’m tackling the intimate side of Parkinson’s that often gets ignored. Erectile dysfunction, vaginal dryness, loss of desire, embarrassment about symptoms… these are real challenges, and they’re not “just in your head.”

We’ll cover:

I’ve had Parkinson’s for 15 years, and not once has my doctor told me what stage I’m in. And you know what? That might actually be a good thing.

In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I break down the five official stages of Parkinson’s and explain why most doctors don’t talk about them. We’ll dive into why these stages don’t always match what we actually live through, why progression isn’t linear, and why focusing on a number can do more harm than good.

I...

Have you ever thought, “Is this Parkinson’s… or is it just me?” You’re not alone.

In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I’m talking about the autonomic symptoms of Parkinson’s—the invisible, often overlooked issues that affect more than 80% of us. These aren’t the tremors or stiffness people expect. These are the ones that whisper: sudden blood pressure crashes, bladder urgency, constipation, unpredictable sweating, temperature swings, and even intimacy struggles that most of us don’t want to admit out loud.

I’ll share my own stories...

When Ozzy Osbourne said, "I’m not dying from Parkinson’s, I’ve been working with it most of my life," he revealed something that completely shifted how I think about this disease.

In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I explore Ozzy’s incredible 16-year journey of living with symptoms before his official diagnosis — and what it teaches us about the hidden years so many of us face.

From the rare PRKN2 genetic variant he carried, to the love and loyalty of his wife Sharon, to his defiant...

In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, we look ahead to the emerging treatments, technologies, and discoveries that could redefine Parkinson’s care in the years to come.

From adaptive deep brain stimulation that adjusts in real time… to gene therapy, stem cell transplants, AI-powered research, and game-changing wearables — Bryce breaks down what’s real, what’s hype, and where the hope truly lies.

You’ll also hear his conversation with BlueRock Therapeutics, whose groundbreaking work in stem cell therapy has him more optimistic than ever, plus pra...

In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I’m diving into the real-life moments and creative solutions that help us get through the toughest days with Parkinson’s. From my own “epic fails” and unexpected wins, to incredible stories sent in by YOU, this episode is packed with tips, humor, and heartfelt encouragement.

You’ll hear:
 • My own clumsy-but-funny moments (including the time I dropped everything)
• How little victories like buttoning a shirt can mean the world
• Real listener stories that prove Parkinson’s is no match for humor, resi...

In this special Q&A episode, Bryce tackles your biggest questions about living with Parkinson’s—from medications to morning struggles to the infamous “Did you take your meds?” debate with loved ones. With his signature blend of honesty and humor, Bryce breaks down the difference between levodopa and pramipexole, shares what finally helped him through depression, and reveals the code word he and his wife use to communicate without conflict.

You’ll also hear hilarious travel tips, like how many pill bottles it takes to set off airport security—and why Bryce carries a neurologist’s letter just in...

Ever felt like your body’s doing the cha-cha without your permission? In this episode, Bryce opens up about life with dyskinesia—the unpredictable and often misunderstood side effect of long-term Parkinson’s medication. From awkward moments at the dinner table to bouncing legs in boardrooms, Bryce shares personal stories, debunks common levodopa myths, and reveals the surprising lesson a dinner with friends taught him about owning his movements.

Plus, he teaches you the 30-second “confidence reset” he uses in public to turn embarrassment into empowerment. Whether dyskinesia has just started showing up or you’re still wondering wh...

Welcome to the Inner Circle — I’m so glad you’re here.

This short message is just for you, our newest member. Whether you’re living with Parkinson’s, a care partner, or both, this community was created with you in mind.

Here’s what you can expect:
 ✔️ Monthly Zoom-style group calls
 ✔️ 24/7 community access to connect, share, and ask questions
 ✔️ Exclusive content, early access, and behind-the-scenes updates
 ✔️ Real support, real people, real connection

You don’t have to say a word if you’re not ready. Watch, listen, and ease in at your own pace. You belong...

One minute you’re walking fine. The next? Your leg’s frozen, your hand’s doing the cha-cha, and your family’s asking, “But you seemed fine this morning!”

In this episode, Bryce tackles one of the most frustrating parts of Parkinson’s: the symptoms that come and go—randomly, without warning, and without a user manual. From spilled coffee to freezing mid-goodbye, it’s the unpredictability that drives us (and everyone around us) a little crazy.

You’ll also hear real tips from the community—like elevator cards, sturdy-chair scanning, and planning for the “just in case” moment. Th...

What happens when Parkinson’s stops following the “rules”? When symptoms change overnight—or your reflection doesn’t even look like you anymore? 

In this powerful episode, Bryce opens up about the long-haul experience of living with Parkinson’s for over 15 years. From unexpected symptoms like facial masking to emotional crashes in the car after tough appointments, he shares the truths no one tells you in the brochure. It’s raw. It’s real. It’s what long-term Parkinson’s really feels like.

He talks about the moment he couldn’t recognize himself, why freezing during a kitchen dance...

Have you ever cancelled plans—not because you were busy, but because you were worried about your Parkinson’s symptoms showing up in public? You’re not alone. In this honest episode, Bryce opens up about the spiral of lost confidence that Parkinson’s can bring, from freezing in public to worrying about hand tremors at the grocery store. He shares real-life stories of embarrassment, isolation, and how rebuilding confidence is never about one “big moment”—it’s about celebrating those tiny, everyday victories.

Learn practical, hard-won strategies for taking your confidence back: lowering the bar for success, focusin...

Is there such a thing as too much Levodopa? In this honest, experience-driven episode, Bryce dives into the reality nobody talks about: knowing when your medication is helping—and when it’s starting to hurt. From the early days of chasing “control” with more pills to the wake-up call of dizziness, exhaustion, and dyskinesia, Bryce shares real stories and practical signs that it’s time to rethink your dose.

Whether you’re newly diagnosed, deep into your Parkinson’s journey, or a caregiver wondering what “too much” looks like, this episode unpacks:

If you don’t listen to your body with Parkinson’s… it will find a way to get your attention.
In this honest and practical episode, I share what 15 years of living with Parkinson’s has taught me about learning the language of your body. From collapsing in someone’s yard to blinking uncontrollably to Carmen’s “you’re fading” look—I’ve had to figure out how to tune into the subtle signs before they turn into a crisis.
Whether you're newly diagnosed or deep into the journey, this episode is full of real-life tools, humor, and reminders that you...

“Wait… what? Facial masking might be a side effect of my Parkinson’s meds?!”
That’s what my neurologist told me — and it completely threw me.
In this episode, I’m breaking down the difference between Parkinson’s symptoms and medication side effects, including the ones you might not expect. We’re talking real-life examples, jaw-dropping side effects, and some moments that’ll definitely make you go, “Oh wow… that’s me.”

🎯 In this episode:
• The symptoms vs. side effects breakdown
• My personal reaction to learning the truth about facial masking
• Common (and surprising) side effects of levod...

Why does choosing what to wear feel like solving a math problem in a hurricane? In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I open up about the very real experience of decision fatigue with Parkinson’s — and what I've learned about coping with it.

Whether you're struggling to decide when to rest, when to walk, or whether soup or toast is the right call for dinner... you're not alone.

🎯 In this episode:
• Why even small decisions can feel massive
• My personal strategies to manage mental overload
...

You’ve heard about the tremors. The meds. Maybe even the stiffness. But what about the wild vivid dreams, sudden sleep attacks, or the crushing mood swings that hijack your day? In this brutally honest episode, Bryce pulls back the curtain on the lesser-known, often humiliating, and definitely under-discussed side effects of Parkinson’s. From impulse control to dyskinesia to the emotional toll of looking “fine” while feeling broken inside—this is the stuff no one puts in the brochure.

This episode is more than just a list of side effects—it’s a raw, relatable, and sometimes hila...

Ever feel like your Parkinson’s meds just… ghost you? One minute you’re moving fine, the next—your leg won’t budge, your brain’s in a fog, and you’re freezing in the middle of a bathroom stall. Welcome to Off Time. Jiql3RvQOCvsqKZBWtjH

In this brutally honest and surprisingly funny episode, Bryce unpacks what it’s really like when the meds stop working. He shares his personal strategies for tracking symptoms, adjusting medication timing, handling awkward moments, and staying sane when Off Time hits at the worst time.

This episode is packed with practical t...

Think Parkinson’s means your travel days are over? Think again. In this episode, Bryce breaks down the honest truth about hitting the road with Parkinson’s—from awkward airport fails to spontaneous road trip wins. Whether you’re planning your next adventure or hesitant to even try, this one’s for you.

Bryce shares his personal travel hacks, medication tips, and why flexibility is key—not just in your body, but in your mindset. You’ll hear about his laugh-out-loud airport struggles, the importance of packing smart, and why traveling with Parkinson’s is still 100% worth it.

It’s n...

 When doctors said "manage your symptoms," I found something better: improv therapy. Here's how saying "Yes, And" to Parkinson's changed everything about how I live with this disease. 

WHAT YOU'LL DISCOVER:

 ✓ Why traditional therapy wasn't enough 

✓ How improv principles apply to Parkinson's challenges 

✓ The "Yes, And" technique for daily symptoms 

✓ Real results from 6 months of improv therapy 

✓ How to find improv programs in your area 

🎭 Ever feel like Parkinson’s stole the fun out of life? What if I told you laughter and improv could help bring it back? In...

Ever looked forward to something, planned it out, got dressed… and then Parkinson’s said “Nope”? You’re not alone. In this raw and real episode, Bryce opens up about one of the most misunderstood parts of Parkinson’s—canceling plans, even when you want to show up. He shares personal stories, the guilt that follows, and how he learned to show himself grace on the hard days.

If you’ve ever felt like you let someone down—or beat yourself up for not pushing through—this one’s for you.

✋ You’re not flaky.

🧠 You’re not weak. Duration: 00:10:52

Some days I can speak on stage in front of hundreds—and others, I forget why I walked into the kitchen. In this honest episode, I’m opening up about the part of Parkinson’s that doesn’t get enough attention: cognition.

From brain fog to memory lapses to that awkward moment when I left my keys in the fridge—this episode is packed with personal stories and the real strategies I use to stay mentally sharp and emotionally grounded.

You’ll learn:

🧠 My daily 10-minute brain workout routine

📓 The journaling habit that changed...

Missing a dose of your Parkinson’s meds can mess up your entire day—stiffness, tremors, brain fog, the works. Bryce knows the struggle firsthand. In this episode, he shares the dead-simple tool that changed his life and helps him take his meds on time, every time.

Say goodbye to swiping away phone alarms and sticky notes that no longer work. Bryce walks through how a $15 pill bottle timer cap became his secret weapon—and how it could save you hours of discomfort, missed doses, and “off” time.

He also shares bonus tips for medication success, i...

Ever wonder what it’s really like to live a full day with Parkinson’s? In this brutally honest and surprisingly uplifting episode, Bryce shares his entire daily routine—from those first stiff, slow steps in the morning to the wind-down rituals at night.

He pulls back the curtain on what works (hello magnesium spray!), what still frustrates him (yes, dropping pills counts), and how he manages his energy, emotions, and mindset through the ups and downs of a life with PD.

This isn’t just a list of habits—it’s a powerful reminder that Parkins...

If I could go back in time, I’d sit down with my newly diagnosed self and share everything I’ve learned—things I wish I’d known, things that would have saved me some fear, shame, and wasted energy. In this episode, I share the conversation I wish I’d had: a message of hope, strength, and perspective for anyone facing a new Parkinson’s diagnosis.

You are still you. Parkinson’s might change parts of your life, but it doesn’t erase your worth, your humor, or your value. I talk about the power of community, letti...

Is it okay to laugh when you’re living with Parkinson’s? Absolutely. In this episode, I share personal stories and reflections on why laughter isn’t about ignoring reality—it’s about surviving and staying human. From dropping water bottles at the airport to freezing at the bottom of an escalator, I’ve had my share of cringe-worthy moments. But here’s the thing: every time I chose laughter over embarrassment, I found a way to reclaim my dignity and connect with others.

Humor is a survival tool—it reminds us that we’re still us. Whether it’s telli...

Let's talk about the awkward—and the power it holds. In this episode, I open up about how I’ve turned those uncomfortable Parkinson’s moments into opportunities to reclaim my dignity and confidence. From rogue arm swings to random freezing in the grocery line, I share personal hacks and stories to help you embrace, not fear, the awkward.

Community Voices:
💬 “I love ‘awkward is unavoidable, shame is optional.’ That grace goes a long way. Humour, honesty, different things work with different personality gifts.” – @merryanne6024
💬 “Your statement about being awkward and not apologizing, not being a problem, and...

Welcome back to Living with Parkinson’s: The Good, The Bad, and The Reality. I’m Bryce, and today we’re kicking off a brand-new mini-series: Parkinson’s Superpowers. That’s right—superpowers! Because Parkinson’s doesn’t just steal things from us, it also forces us to get creative and adapt in ways we never thought possible.

In this episode, I’m sharing some of the unexpected physical superpowers I’ve developed since my diagnosis. From one-handed ninja-level laundry folding to stealth mode shuffling through tight spaces, I’ve learned to navigate the world with Parkins...

Welcome back to Living with Parkinson’s: The Good, The Bad, and The Reality. I’m Bryce, and in today’s episode, we’re diving deep into the mental and emotional superpowers that Parkinson’s has given me—and maybe you too.

Because Parkinson’s doesn’t just affect how we move, it reshapes how we think, how we feel, and how we connect with others. From a supercharged empathy radar to Jedi-level patience, from selective listening to humor in chaos, and that unshakable mental grit—we’re talking about the unexpected strengths that help us navigate life wit...

Welcome back to Living with Parkinson’s: The Good, The Bad, and The Reality. I’m Bryce, and today we’re wrapping up our superpower mini-series with the funniest, most unexpected wins that come with Parkinson’s. From being the accidental screenshot king to voice-to-text adventures that would make anyone blush, we’re talking about the everyday triumphs that make us smile—even on the toughest days.

Because if we can’t laugh at Parkinson’s, then why are we even doing this, right? So grab a coffee, get cozy, and let’s laugh at this thing togethe...

In this powerful and deeply personal episode, I open up like never before.

From the early days of my diagnosis to moderating national Parkinson’s events—while people didn’t even realize I had it—I share the quiet struggles, the moments I felt invisible, and how I found my purpose again. I talk about the exhaustion, the comments that made me feel unseen, and the tools that help me keep going, like the life-changing pill bottle timer.

If you’ve ever felt like Parkinson’s was shrinking your world, I want you to hear this: Parkin...

This episode is a love letter to the unsung heroes — the care partners, the spouses, the friends, the ones who stay.

Bryce opens up about how Parkinson’s affects everyone, not just the person diagnosed. From disappearing friendships to the invisible emotional toll on partners, this is a deeply honest conversation about what it really means to live with Parkinson’s in a relationship, in a family, in a community.

He explores guilt, grace, burnout, and how the strongest relationships learn to adapt — not by going back to what was, but by finding a new rhythm.<...

Some days, we just need space to not be okay. In this raw and real episode, Bryce opens up about what it feels like to carry Parkinson’s day after day—and how even the strongest among us need permission to fall apart sometimes.

Whether you’re living with Parkinson’s or caring for someone who is, this episode is your reminder: You're not failing, you're feeling. Bryce talks candidly about facial masking, emotional fatigue, and the invisible pressure to “stay positive” when your body—and your heart—are just too tired.

🧠 “Let me rest—not because I’m weak, b...

Ever catch your reflection and think, "Who is that?" In this raw and honest episode, Bryce explores the emotional disconnect many people with Parkinson’s feel between who they are on the inside and what they see on the outside. From identity shifts to the grief of losing your former self, this episode is a deeply personal take on body image, self-perception, and how Parkinson’s distorts both.

Bryce also shares practical tips like creating a "Parkinson's Win List" to rebuild self-confidence, and he opens up about the loneliness of invisible symptoms versus the stigma of visible ones...

 🎙️ Recorded Live – Now Available on Replay!
This episode is a replay of a live Q&A with Bryce, where he answered real questions from the global Parkinson’s community. From early warning signs and misdiagnoses to dystonia and daily challenges — nothing was off-limits. Whether you’re newly diagnosed or decades in, this honest, unfiltered conversation is for you. 

📺 Don’t forget to like, share & subscribe for weekly real talk on living with Parkinson’s.

📌 Products I Personally Use & Recommend:
 All products Individually Links:
 ☀️ Light Therapy Wake-Up Alarm Clock – https://amzn.to/41MP5zP
😍 Magnesium Spray...

In this deeply personal episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I sit down to finally read a letter I’ve been writing in my head for years—a letter to Parkinson’s.

It’s not just a rant. It’s a reckoning.

I open up about the pain, the loss, the identity shift… but also the growth, the purpose, and the unexpected clarity this journey has brought. If you’ve ever wanted to scream, cry, or write your own letter to Parkinson’s, this one’s for you.

Sometimes we do...

In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I open up about one of the biggest mental and emotional challenges we face—the fear of what’s to come.

From leaving a job I loved, to navigating the breakdown of a 27-year marriage, to adjusting to life in three-hour medication windows—this episode is raw and real. I share how Parkinson’s pushed me to ask painful questions like:

• What if I can’t do the things I used to love?

• What will my future look like?

• Am...

When you’re first diagnosed with Parkinson’s, no one tells you that you’ll grieve a life you’re still living. But you do. You grieve the version of yourself you thought you’d be. The future you pictured. The plans you made.

In this deeply personal episode, I talk about the other kind of grief—the kind that sneaks in slowly as you start letting go of pieces of your independence, your identity, your rhythm. And I’ll tell you the truth I wish someone had told me years ago.

💬 I’ll also share:

They say sleep is the best medicine—but Parkinson’s clearly didn’t get the memo. In this brutally honest episode, I’m talking about the weird, wild, and exhausting world of Parkinson’s and sleep: the midnight leg cramps, the 3 a.m. bathroom runs, the dreams that could win Oscars… and why it’s so hard to get some damn rest.

I’ll walk you through:

In this follow-up to Episode 5, I’m answering one of the most asked questions I got: "What else do you take alongside your Parkinson’s meds?" In this episode, I break down the five over-the-counter supplements that I’ve personally added to my daily routine—and the two sleep tools I wish I started using years ago. Spoiler: one of them involves spraying my feet!

💊 From Vitamin D3 and B12 to magnesium spray and light therapy alarms, I’ll walk you through what’s helped me manage brain fog, sleep better, and feel more balanced. This is real, practical...

In this episode of Living with Parkinson’s: The Good, The Bad, and The Reality, Bryce breaks down how to build a Parkinson’s healthcare team that actually supports you. He shares lessons from his 15+ year journey navigating doctors, specialists, therapists, and the occasional “you look fine” comment.

From your neurologist to your pharmacist—and even the front desk person who actually listens—Bryce explains who matters, why they matter, and how to advocate for yourself when you feel dismissed or overwhelmed. If you’ve ever felt like you’re managing Parkinson’s alone or unsure who should be in your...

In this episode of Living with Parkinson’s: The Good, The Bad, and The Reality, Bryce dives deep into the emotional rollercoaster that comes with life after diagnosis. This isn’t just about tremors or stiffness—it’s about anger, sadness, shame, frustration, and all the unspoken mental battles that come with a chronic illness like Parkinson’s.

Bryce shares his own highs and lows—including the moments when he tried to hide how he was feeling—and how he learned to be honest with himself, with others, and with the disease itself. If you’ve ever felt overwhelmed...

In this episode of Living with Parkinson’s: The Good, The Bad, and The Reality, Bryce breaks down his personal medication journey over the last 15 years of living with Parkinson’s—from his very first prescription to his current daily routine.

He shares what worked, what didn’t, and how his approach has evolved through three key stages:
 • 0–5 years post-diagnosis
 • 5–10 years in
 • 10–15 years and beyond

Current Daily Medications:
Bryce now takes approximately 35–40 pills per day, including:
• Levodopa/Carbidopa – 4 pills every 3 hours, ~7x/day
• Pramipexole – 3x/day
• Slow-release Levodopa...

In this episode of Living with Parkinson’s: The Good, The Bad, and The Reality, Bryce shares some of the best—and worst—advice he’s received since being diagnosed with Parkinson’s. From well-meaning but unhelpful comments to truly game-changing insights, he explores what stuck, what stung, and how he’s learned to trust his own instincts along the way.

Whether you’re living with Parkinson’s, supporting someone who is, or just trying to understand it better, this episode reminds us that not all advice is created equal—and that it’s okay to find your own path forwar...

Parkinson’s changes everything — and in this episode, Bryce talks about what he’s had to let go of, what he’s learned to do differently, and how he keeps moving forward. From stepping away from a career to adjusting his mindset, Bryce opens up about adapting to a life that doesn’t always follow the plan.

He shares funny, frustrating, and deeply honest moments that highlight the everyday reality of living with PD — from medication timing to letting go of guilt around needing help.

What people are saying:“The way you balance truth and humor is exact...

Looking back, there are things Bryce wishes someone had told him on day one — things that might have saved him time, stress, and second-guessing. In this episode, he shares what he’s learned the hard way, what no one warned him about, and the mindset shifts that made all the difference.

Whether you’re newly diagnosed or years into your Parkinson’s journey, this episode is full of insights, honesty, and encouragement from someone who’s been there.

What people are saying:

“I laughed out loud… and then cried. This is exactly what I needed today...

In the very first episode of Living with Parkinson’s, Bryce shares his personal journey — from getting diagnosed at age 40 to keeping it a secret for years, to finally opening up and embracing a new purpose. It’s raw, honest, emotional, and real. This episode sets the tone for everything to come — the good, the bad, and the reality of living with Parkinson’s.

What people are saying:

“You nailed it. I thought I was alone until I found your videos.”

If this episode resonates with you, please leave a 5-star rating and a quick review...

Welcome to Living with Parkinson’s: The Good, The Bad, and The Reality — a podcast for real people navigating a real diagnosis.

I’m Bryce. I was diagnosed with Parkinson’s nearly 15 years ago, and I’ve experienced the ups, the downs, and everything in between. In this podcast, I’m sharing honest conversations, personal stories, and practical insights for people living with Parkinson’s, caregivers, and anyone looking for strength, hope, and support on this journey.

In this quick trailer, you’ll hear what the show is all about, what to expect, and why I created it — f...